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It’s Christmas – let’s Read, Watch and Make Snow!

Date: 20 Dec, 2017  No Comments  ASUK Author

Over the festive period why not take the time to grab something warm and comforting and have a read of our latest winter newsletter, full of updates and family stories click HERE to view You can also click HERE to watch these truly insightful videos from parents, Clinicians and people affected by Alström Syndrome. Where


Join our Team

Date: 12 Dec, 2017  No Comments  ASUK Author

Trustee Vacancy Alström Syndrome is a rare genetic syndrome that affects less than 1 in 500,000. Alström Syndrome UK supports those living with the condition, their families and those working with them. If you would like to use your skills and experience as a Trustee for Alstrom Syndrome UK we very much look forward to