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Searching for a ‘Rare’ Trustee

Date: 06 Jun, 2019  No Comments  ASUK USER

Alstrom Syndrome UK currently has vacancies for 3 Trustees to join the Board Alström Syndrome is an ultra-rare genetic syndrome that affects less than 1 in 500,000. Alström Syndrome UK (ASUK) is a patient led organisation that supports those living with the condition, their families and those working with them. Alström syndrome is a complex