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About Us

Alström Syndrome UK provides support for those affected by Alström Syndrome, their carers and professionals working with them.

• We offer help with gaining access to medical assessments with doctors who have gained expertise in understanding the many manifestations of Alström Syndrome.
• We provide annual medical screening clinics.
• We offer help and advice with educational, social and benefit problems.
• We offer support to families from families who live with Alström Syndrome.
• We publish a quarterly newsletter.
• We provide an annual family Conference at little or no cost to those living with Alström Syndrome.
• We raise funds for research into Alström Syndrome.

Whether you are worried that you or someone you care for is affected by Alström Syndrome, or you need help, practical advice or emotional support, then please contact us by email or phone, and we’ll be happy to help you.