ASUK are delighted to be attending the Asterix End Symposium on the 18th and 19th September 2017 in the Netherlands.
The focus will be on the ‘New Methodology for clinical trials in rare diseases’ and ASUK National Development Manager, Kerry Leeson-Beevers will be presenting on the role of patient engagement in clinical research. Ensuring patients voices are heard at every stage.
Asterix (Advances in Small Trials dEsign for Regulatory Innovation and eXcellence) is an EU funded research project focusing on the development of more efficient and effective research projects to ensure rare diseases have the same opportunities as more common conditions. This is through studying new drugs, treatments and investigating further to learn more about rare diseases.
Asterix actively encourage the voice of patients throughout the research process, acknowledging that often in the field of rare diseases, it is the patients and family members who know more about their condition than the medical professionals involved. ASUK is a member of their Patient Think Tank group to ensure patients voice is always at the forefront of any developments; ensuring patient perspectives are taken into account when clinical trials are being designed.
You can find out more about the work of Asterix and further information about the symposium via their website http://www.asterix-fp7.eu/