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PRODID:-//Alstrom Syndrome - ECPv6.15.20//NONSGML v1.0//EN
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X-ORIGINAL-URL:http://www.alstrom.org.uk
X-WR-CALDESC:Events for Alstrom Syndrome
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BEGIN:VTIMEZONE
TZID:UTC
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TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20160101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20191102T140000
DTEND;TZID=UTC:20191102T150000
DTSTAMP:20260414T232629
CREATED:20191028T093441Z
LAST-MODIFIED:20191028T093441Z
UID:4037-1572703200-1572706800@www.alstrom.org.uk
SUMMARY:Annual General Meeting
DESCRIPTION:Alström Syndrome UK are pleased to announce our Annual General Meeting will take place on Saturday 2nd November 2019 from 2:00 – 3:00 pm via teleconference. The Board of Trustees and Chief Executive will all be in attendance. \nAt the AGM we will celebrate the achievements of the organisation and family members over the last year. We will present the minutes of the previous Annual General Meeting of ASUK\, held in January 2019\, for Board approval as well as receiving the Annual Report and Statement of Accounts for the year 1st April 2018 – 31st March 2019. \nIt will be an informative hour or so and we hope you can join us\, we promise a very warm welcome! \nYou can download the AGM agenda HERE \nIf you can’t join the AGM teleconference but have comments or questions for us please send them directly to the Chair of Trustees\, Trevor Parkin trevor.parkin@alstrom.org.uk or to the Chief Executive\, Ann Chivers ann.chivers@alstrom.org.uk who will raise your comments or questions on your behalf. \nPrinted versions of the Annual Report and Accounts can be provided on request. They will also be available on the ASUK website a week after the AGM.  Please find the meeting minutes from the AGM last year click HERE \nHow to join\nPlease join the ASUK Annual General Meeting from your computer\, tablet or smartphone:\nhttps://global.gotomeeting.com/join/537980141 \nYou can also dial in using your phone:\nUnited Kingdom: +44 20 3713 5028\nAccess Code: 537-980-141 \nMore phone numbers:\nUnited States: +1 (571) 317-3129 \nNew to GoToMeeting? Get the app now and be ready when your first meeting starts:\nhttps://global.gotomeeting.com/install/537980141 \n  \nFor more information please contact Catherine Lewis on 07970 071675 or email catherine.lewis@alstrom.org.uk
URL:http://www.alstrom.org.uk/event/annual-general-meeting/
ORGANIZER;CN="Alstrom Syndrome UK":MAILTO:catherine.lewis@alstrom.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191019
DTEND;VALUE=DATE:20191020
DTSTAMP:20260414T232629
CREATED:20190910T120248Z
LAST-MODIFIED:20190910T120248Z
UID:3958-1571443200-1571529599@www.alstrom.org.uk
SUMMARY:ASUK Conference
DESCRIPTION:ASUK is very excited to announce that the next ASUK family gathering will take place in Birmingham on Saturday 19th October 2019. \nASUK are planning a family event to bring us all together; for a day full of information and updates\, accessible product demonstrations and interactive workshops.  This will be followed in the evening by time to reconnect and catch up with old friends and maybe even make new ones over dinner. \nThe event will take place at the Holiday Inn\, hotel M6\, Junction 7 as the name suggests it is close to the motorway so gives easy access for those travelling by car and is close by to the city centre for those using the train or plane! It is a beautiful venue set in 7 acres of land\, with plenty of space inside and out and includes a swimming pool and gym. \nIf you need accommodation on the Friday and/or Saturday\, the Holiday Inn M6\, Junction 7 have offered an early bird rate of £65.00 per room\, per night on a B&B basis\, family rooms and accessible rooms are available (rooms sleep 2 adults and 2 children) but these rooms are limited so please contact the hotel on 01604 931504 and choose option 1 for reservations\, quoting AL1 – Alström Syndrome UK to ensure you get the early bird rate. \nPlease get in touch to book your place\, Catherine is looking forward to hearing from you.  Her email address is Catherine.lewis@alstrom.org.uk or give her a call on 01803 368871. \nPlease download the booking form HERE for more information and ensure you send this back promptly to reserve your place.\nWe look forward to seeing you all there!
URL:http://www.alstrom.org.uk/event/asuk-conference/
LOCATION:Holiday Inn Birmingham M6\, Junction 7\, Chapel Lane\, Birmingham\, B43 7BG\, United Kingdom
ORGANIZER;CN="Alstrom Syndrome UK":MAILTO:catherine.lewis@alstrom.org.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20181130
DTEND;VALUE=DATE:20181202
DTSTAMP:20260414T232629
CREATED:20180417T093445Z
LAST-MODIFIED:20180417T093445Z
UID:3408-1543536000-1543708799@www.alstrom.org.uk
SUMMARY:RAREfest 2018
DESCRIPTION:RAREfest 2018\, Nov 30th and Dec 1st 2018 at The Guildhall\, Cambridge
URL:http://www.alstrom.org.uk/event/rarefest-2018/
LOCATION:The Guildhall\, Cambridge\, The Guildhall\, Cambridge\, United Kingdom
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20171006
DTEND;VALUE=DATE:20171008
DTSTAMP:20260414T232629
CREATED:20170511T180719Z
LAST-MODIFIED:20171004T135037Z
UID:2909-1507248000-1507420799@www.alstrom.org.uk
SUMMARY:ASUK Family and Professional Conference
DESCRIPTION:We warmly invite you to our ‘Health\, Happiness and Wellbeing’ conference taking place on the 6th and 7th October 2017 at the Aston Conference Centre in Birmingham. The conference will begin with a research and scientific symposium from 1:30 pm on Friday 6th October and will conclude after an evening of entertainment and celebrations on Saturday 7th October 2017. \nThe event aims to bring together families\, individuals and professionals to learn more about this ultra-rare condition. This is a unique opportunity to hear about pioneering research and clinical developments\, take part in interactive workshops and learn from each other’s experiences; as well as meeting up with other families and friends. \nWe’re delighted that Dr Pietro Maffei from AS Italy and Professor Colin Johnson from the Institute of Molecular Medicine at St James’s University Hospital\, have agreed to speak about their current research and clinical developments. \nThe AS teams from Birmingham Children’s Hospital and the Queen Elizabeth Hospital will also be presenting about clinical developments\, the progression of research and clinical trial findings. \nMeanwhile to book onto the conference please complete the booking form here. The conference\, dinner\, refreshments\, activities and entertainment are all paid for by Alström Syndrome UK\, you just pay for your accommodation and travel. \nAccommodation in Birmingham \nIf you need accommodation; we have negotiated an early bird rate at the Holiday Inn\, Snow Hill (next to the Birmingham Children’s Hospital) in Birmingham at £59.00 per room\, per night (rooms sleep two adults and two children) but these rooms are limited so please contact the hotel directly on 0121 647 3999 quoting A1C Group Name: Alström Catherine Lewis by the 30th June 2017 so we can ensure you get the best rate (accommodation is paid for when you depart). \nThe Conference will be at the Aston Conference Centre www.conferenceaston.co.uk/guestinfo \nIf you are having any difficulties completing the booking form or if you would like the information in an alternative format such as Braille\, please call or email me. \nWe look forward to seeing you all there! \nKindest Regards\nCatherine \nCatherine Lewis\nTel: 07970 071675\nEmail: catherine.lewis@alstrom.org.uk
URL:http://www.alstrom.org.uk/event/asuk-family-and-professional-conference/
LOCATION:Holiday Inn Birmingham M6\, Junction 7\, Chapel Lane\, Birmingham\, B43 7BG\, United Kingdom
CATEGORIES:New Events
ORGANIZER;CN="Alstrom Syndrome UK":MAILTO:catherine.lewis@alstrom.org.uk
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