RAREfest 2018
2018-11-30 - 2018-12-01 | The Guildhall, Cambridge, The Guildhall, Cambridge, United Kingdom
RAREfest 2018, Nov 30th and Dec 1st 2018 at The Guildhall, Cambridge

ASUK Conference
2019-10-19 | Holiday Inn Birmingham M6, Junction 7, Chapel Lane, Birmingham, B43 7BG, United Kingdom
ASUK is very excited to announce that the next ASUK family gathering will take place in Birmingham on Saturday 19th October 2019.
ASUK are planning a family event to bring us all together; for a day full of information and updates, accessible product demonstrations and interactive workshops. This will be followed in the evening by time to reconnect and catch up with old friends and maybe even make new ones over dinner.
The event will take place at the Holiday Inn, hotel M6, Junction 7 as the name suggests it is close to the motorway so gives easy access for those travelling by car and is close by to the city centre for those using the train or plane! It is a beautiful venue set in 7 acres of land, with plenty of space inside and out and includes a swimming pool and gym.
If you need accommodation on the Friday and/or Saturday, the Holiday Inn M6, Junction 7 have offered an early bird rate of £65.00 per room, per night on a B&B basis, family rooms and accessible rooms are available (rooms sleep 2 adults and 2 children) but these rooms are limited so please contact the hotel on 01604 931504 and choose option 1 for reservations, quoting AL1 – Alström Syndrome UK to ensure you get the early bird rate.
Please get in touch to book your place, Catherine is looking forward to hearing from you. Her email address is Catherine.lewis@alstrom.org.uk or give her a call on 01803 368871.
Please download the booking form HERE for more information and ensure you send this back promptly to reserve your place.
We look forward to seeing you all there!

Annual General Meeting
2019-11-02 14:00 - 15:00 UTC
Alström Syndrome UK are pleased to announce our Annual General Meeting will take place on Saturday 2nd November 2019 from 2:00 – 3:00 pm via teleconference. The Board of Trustees and Chief Executive will all be in attendance.
At the AGM we will celebrate the achievements of the organisation and family members over the last year. We will present the minutes of the previous Annual General Meeting of ASUK, held in January 2019, for Board approval as well as receiving the Annual Report and Statement of Accounts for the year 1st April 2018 – 31st March 2019.
It will be an informative hour or so and we hope you can join us, we promise a very warm welcome!
You can download the AGM agenda HERE
If you can’t join the AGM teleconference but have comments or questions for us please send them directly to the Chair of Trustees, Trevor Parkin trevor.parkin@alstrom.org.uk or to the Chief Executive, Ann Chivers ann.chivers@alstrom.org.uk who will raise your comments or questions on your behalf.
Printed versions of the Annual Report and Accounts can be provided on request. They will also be available on the ASUK website a week after the AGM. Please find the meeting minutes from the AGM last year click HERE
How to join
Please join the ASUK Annual General Meeting from your computer, tablet or smartphone:
https://global.gotomeeting.com/join/537980141
You can also dial in using your phone:
United Kingdom: +44 20 3713 5028
Access Code: 537-980-141
More phone numbers:
United States: +1 (571) 317-3129
New to GoToMeeting? Get the app now and be ready when your first meeting starts:
https://global.gotomeeting.com/install/537980141

For more information please contact Catherine Lewis on 07970 071675 or email catherine.lewis@alstrom.org.uk
