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Alström Syndrome UK have a dedicated community area within RareConnect. This is a safe and supportive online space designed around patient groups for patients, families and carers to share information on their health experiences.

The Forum and its content are excluded from the Information Standards process because this is user generated information which is not part of the scope.  Information posted onto the site in no way reflects the Information Standards policies and procedures.

Click on the logo to join now!


You can also find out about ASUK news and events via our Face book and twitter pages.

Click here to go to our dedicated Facebook page

Click here to go to our Twitter page

If you need further assistant please contact Catherine Lewis catherine.lewis@alstrom.org.uk or call 01803 613117.