NHS Alström Syndrome
Multi-Disciplinary clinics 2009/2010
The NHS are now offering special clinics for people with Alström Syndrome. Please contact us if you would like to attend.
We hope that families will be helped by attending one or two clinics per year. Extra visits to either site for specific problems could also be arranged. The clinics include:
- A carousel of tests and assessments would be timetabled for each person with an hour for each of cardiology, respiratory tests, diabetes and metabolism and prearranged appointments for audiology/psychology/urology.
- A summary of results and recommended therapy would be sent to each family, and their hospital and community carers.
- A carefully planned set of tests on one blood sample at least once per year (providing patient and family not too upset or young)
Accommodation costs will be provided for by the NHS Trusts involved.
Children's Clinics 2010
To be held at Birmingham Children's Hospital
March 22nd
June 7th
July 5th
November 8th
Adult Clinics 2010
To be held at The Victoria Hotel in Torbay.
January 21st/22nd
March 11th/12th
July 8th/9th
September 2nd/3rd
Should dates need to be altered for any reason then everyone shall be informed as soon as possible.