NHS Alström Syndrome
Multi-Disciplinary clinics 2008
The NHS are now offering special clinics for people with Alström Syndrome. Please contact us if you would like to attend.
We hope that families will be helped by attending one or two clinics per year. Extra visits to either site for specific problems could also be arranged. The clinics include:
- A carousel of tests and assessments would be timetabled for each person with an hour for each of cardiology, respiratory tests, diabetes and metabolism and prearranged appointments for audiology/psychology/urology.
- A summary of results and recommended therapy would be sent to each family, and their hospital and community carers.
- A carefully planned set of tests on one blood sample at least once per year (providing patient and family not too upset or young)
Travel and Accommodation costs will be provided for by the NHS Trusts involved.
Adult Clinics 2008
To be held at The Victoria Hotel in Torbay.
March 13th/14th
June 26th/27th
September 4th/5th
Children's Clinics 2008
To be held at Birmingham Children's Hospital
February 18th
May 12th
July 14th
Nov 10th
Should dates need to be altered for any reason then everyone shall be informed as soon as possible.