In this May edition we have a full round up for you, including Ann and Alex jetting off to the Alstrom Syndrome International conference in the USA!
and HOT OFF THE PRESS
ASUK are hosting a family event later this year, full of useful information, activities and interactive workshops, something for everyone! We would love to hear from you about what you would like at the event and whilst we get stuck into the planning, we’d love for you to share your thoughts with us about what you would like to see or do. You can find full information in the e-newsletter.