News
The dates for the 2008 interdisciplinary clinics are now available.
ASUK and the NHS are offering multi-disciplinaryclinics for people with the syndrome. Get the 2008 Clinic dates here
The newsletter gets a new editor
After 7 years hard work Sean Waiting has decided to step down as Alström Syndrome’s Newsletter editor. I'm sure everyone would like to join me in wishing Sean all the best with his future endeavours.
I would like to take this opportunity to welcom Charlotte Parkinson as the new editor of the newsletter, and wish her all the best in the job.
A Winner in the Third Sector Excellence Awards
The Support Group was delighted to be the 1st Prize Winner in the 2007 Third Sector Excellence Awards. Winning this demonstrates the hard work put in by Kay Parkinson in raising the profile of the Group.
The Support Group was also awarded a grant of £46,000 from the Department of Health Compact Scheme. This money will help us to continue and improve on the servicewe can offer.
Read more about the Support Group and the Department of Health in Word or Plain Text format.
New look Spring 2008 Newsletter is now available
The Newsletter has been given a brand new look, which we hope you will like. It includes details of the NHS Alström Syndrome Multi-Disciplinary Clinics, and a report on the 2007 Alström Syndrome AnnualConference.
Spring 2008 in PDF
Spring 2008 in plain text
Article on AlströmSyndrome in Western Morning News
Gameforce Ltd Donates £600
On 3rd December, a charity auction at Dragonmeet 2005, a games convention, raised £600 for ASUK. A similar amount was raised for another charity CLIC Sergeant which deals with cancer and leukemia in children. We'd like to thank Gameforce Ltd, the organisers, the auctioneer James Wallis and all the successfulbidders for this excellent work.
-->Charlotte on TV 1
This Morning TV (External link) is doing a series of programmes which go out on a Thursday entitled “A Life With” where they are featuring a number of people affected by rare disorders. Charlotte Parkinson, who has Alström Syndrome appeared on 9rd January 2006.
Charlotte on TV 2
Charlotte also appeared on ITV West Country. You can see the clip in the Articles section.
Te quiero mucho Xim!!