News
New look Winter 2009 Newsletter is now available
In this issue of the Alström Syndrome newsletter you can read about grant applications for research grants lead by Dr. Mike Hayles, meet our latest board member Dr. Dan Jagger, and find a copy of the multi-disciplinary clinic dates for 2009.
Winter 2009 in PDF
Winter 2009 in plain text
Clinic dates 2009
The dates for the 2009 multi-disciplinary clinics are now available.
ASUK and the NHS are offering multi-disciplinary clinics for people with the syndrome. Get the 2009 Clinic dates here
A Winner in the Third Sector Excellence Awards
The Support Group was delighted to be the 1st Prize Winner in the 2007 Third Sector Excellence Awards. Winning this demonstrates the hard work put in by Kay Parkinson in raising the profile of the Group.
The Support Group was also awarded a grant of £46,000 from the Department of Health Compact Scheme. This money will help us to continue and improve on the servicewe can offer.
Read more about the Support Group and the Department of Health in Word or Plain Text format.
Article on Alström Syndrome in Western Morning News
Gameforce Ltd Donates £600
On 3rd December, a charity auction at Dragonmeet 2005, a games convention, raised £600 for ASUK. A similar amount was raised for another charity CLIC Sergeant which deals with cancer and leukemia in children. We'd like to thank Gameforce Ltd, the organisers, the auctioneer James Wallis and all the successfulbidders for this excellent work.
-->Charlotte on TV 1
This Morning TV (External link) is doing a series of programmes which go out on a Thursday entitled “A Life With” where they are featuring a number of people affected by rare disorders. Charlotte Parkinson, who has Alström Syndrome appeared on 9rd January 2006.
Charlotte on TV 2
Charlotte also appeared on ITV West Country. You can see the clip in the Articles section.
Te quiero mucho Xim!!