Stories

Inspirational stories from those people living with Alström Syndrome

Inspirational Family Film – Take a look

Michelle Hough has made a short film of her interpretation of the beautiful Portia’s Song from Friends and Heroes.

“It features my wonderful daughter Millie and her story from birth to now. Millie was in intensive care at 5 1/2 weeks with heart failure and the road since has been a very rocky one. Millie has Alström Syndrome, she is registered blind and will continue to battle many severe medical conditions. She has and continues to inspire and amaze, we don’t know the future but we will not waste the present. Millie I adore and love you”

To raise awareness of Alström Syndrome UK please watch the video via the YouTube link and share on Facebook, Twitter and any other social networks you are involved with.

Watch the video on YouTube here.

Olympic Judo Team GB Watch out!
John-James who is 15 years old has discovered judo! Click here to read more.

Scrabble Champion

Liam Mackin (previously known as Liam Midwood) has made a bit of a name for himself at scrabble. In a recent scrabble competition at Shipley Scrabble Club in Yorkshire, Liam competed against people more than twice his age and won 2 of his 4 games. “I was amazed at how well he played,” says Kerry Leeson-Beevers.

Our picture shows Liam winning his second game!

All proceeds of the games were donated to AS UK and this was over £260

Well done Liam!