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Donations and Awards

Alström syndrome UK is a charity supported by donations.

We would like to say a huge thank you to everyone who supports ASUK and raises funds for our great cause.

Thank you to the following organisations and individuals who support ASUK:

National Lottery and Sport England - Portrait (CMYK)

Sport England have funded family support services alongside tandems and trikes to enable families to get out and about together and enjoy cycling in their local area.

J4G logo

Jeans for Genes and Genetic Disorders UK – They have funded ‘Living with Alstrom Syndrome’ film – this can be viewed here


ASUK Research project – £350,000 was funded by the BIG Lottery fund

BIG Lottery LOGO

The Lottery Funding – Awards for All have also funded our PossAbility volunteering project.

The Sylvia Adams Trust who have contributed £48,722.00 towards the ASUK Asian Mentoring Scheme

Brunel Manor in Torquay and Torbay Holiday Helpers Network who enabled many families to enjoy a break in Torquay in August 2013.

A HUGE thank you to Brunel Manor who have agreed for the family week in Torquay to be an annual event.

The St. James’s Place Foundation – £10,000  as a contribution to our full-time Transition Coordinator

You can learn more about St. James’ Place Foundation here

Bradford Short Breaks funded £4,875.00  to enable young people from Bradford to have an adventure at the Calvert Trust in the Lake District during October half term 2013

  • Nichola Martland and Stacey Chaplin – For running the London Marathon in April 2012
  • Amy Farmer for running the Bupa 10K Marathon in aid of ASUK
  • The ASUK cycle team who raised over £13,000 cycling from Torbay Hospital to Birmingham Hospital in June 2012
  • Liam Mackin for his fundraising efforts and charity awareness raising
  • Bike Club for their £6,860 grant towards ASUK Family Bike Club

Special Thanks

We would like to thank all those who have helped us:

  • Phil Pell of Carma Creative for creating the look of this site alongside Bruce Pell for designing the newsletters and promotional materials
  • Hearfirst who provide excellent awareness training

Special Recognition

We would like to give special recognition and thanks to the following individuals and organisations for dedicating over 10 years hard work to the charity.

  • Kay and John Parkinson
    Without their unstinting efforts, Alström Syndrome UK would not exist, let alone be providing health and social care at such an exceptionally high level.
  • Birmingham Children’s Hospital
    For the dedicated care of Alström Syndrome patients and for establishing the World’s first multi-disciplinary clinics for children.
  • The Queen Elizabeth Hospital, Birmingham
    For the dedicated care of Adult patients who are affected by Alstrom Syndrome through the multi-disciplinary clinics
  • Torbay Hospital
    For the dedicated care of Alström Syndrome patients and for establishing the World’s first multi-disciplinary clinics for adults and passing on their experience to the Queen Elizabeth Hospital who are now facilitating the clinics

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