Join our team!


Join our team!

Date: 23 Sep, 2021  No Comments

We are on the hunt for two Alström Syndrome Care Coordinators…

 

Do you relish the challenge of making a positive impact on people’s lives supporting individuals with a rare disease and those who love and care for them?

If you do, then come and join our award-winning charity, Alström Syndrome UK (ASUK) which provides information, support and advice for individuals, their families, carers and professionals.

Alström Syndrome (AS) is a very rare genetic condition which can cause progressive blindness and hearing loss. Most people with Alström Syndrome will have dual sensory loss. It can also lead to heart and kidney failure, type 2 diabetes, liver dysfunction and associated problems. The symptoms arise at different stages making diagnosis and treatment difficult.

ASUK raise awareness, support pioneering research, and enable better treatments and monitoring through multi-disciplinary NHS clinics.

We have two positions available as part of our highly commended family support service. One of the roles will be responsible for supporting the coordination of the Alström multi-disciplinary clinics in Birmingham and linking with local healthcare professionals. The other role will include liaising with individuals, families, and local service providers to plan and deliver fun and engaging activities. Both roles will involve developing and continually updating person cantered plans and providing a support service for families.

Role               3 days per week (flexible)

Location       Based at home
1 role will require frequent travel in Birmingham and the Midlands
1 role will require travelling nationally

Salary            £22,448-£25,448 (FTE)
Actual salary 0.6 roles, £13,468 – £15,268.
Depending on experience and knowledge.

Closing date Monday 1st November 2021 by 9am

Interviews     10th/11th November 2021 (face to face interview)

About you
You will have experience in a similar role where you will have learnt the importance of supporting individuals and families according to their needs, whether that is professionally, as a volunteer or as a relative with lived experience. Ideally you will have some experience of working with people with dual sensory loss and be confident in talking with individuals who may have a range of differing abilities. You will recognise the importance of good support and continually look for ways to improve this vital family support service. You will have brilliant people and administration skills.

It will be a distinct advantage if you have personal experience or a connection to a rare and/or complex condition.

If you like a challenge, want to make a difference to people’s lives and feel passionate about the rights of families then we would be eager to hear from you.

Recruitment pack for Alström Syndrome Care Coordinator (Highly Specialised Service)

  1. Welcome Letter
  2. Job Description
  3. Person Specification
  4. Application Form
  5. Equality and Diversity Monitoring Form

Recruitment pack for Alström Syndrome Care Coordinator (Family Support Service)

  1. Welcome Letter
  2. Job Description
  3. Person Specification
  4. Application Form
  5. Equality and Diversity Monitoring Form

Please send your completed application forms and equality monitoring forms to Catherine Lewis by email catherine.lewis@alstrom.org.uk