Be a Fundraising Hero – Your Way!
Whether you’re a coffee connoisseur, a sporty superstar, or an adrenaline adventurer, there’s a way just for you to make a real difference for children, young people, and families affected by Alström Syndrome.
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Host a bake sale
- Take on a fitness challenge
- Organise a coffee morning
- Brave a skydive
- Plan something totally unique!
Big or small, every fundraiser helps us offer vital support and hope to those living with this ultra-rare condition. The possibilities are endless – and so is your impact.
Meet some of our incredible fundraisers – our everyday heroes!
In February 2025, Aidan did the impressive challenge of 10K a day for 10 days!
“We would like to do this on behalf of our daughter Sheila as thank you to Alström UK for the support provided to us since diagnosis 2021. We attend a clinic annually where they provide a multi-disciplinary clinic. They organise accommodation for us and provide us with meals. The charity is amazing and the team provide support to us whenever we need it. Sheila is an amazing little girl, who has been through so much for someone so little, both of our families are very proud of her. We are determined that this illness will not define her. Any donation would be greatly appreciated, I’m running 10k a day for 10 days, starting 21st Feb for 10 days. I’m ready to hit the roads…lets go”
Millie and Pete from New College Worcester, took on a 24 hour fitness challenge in June 2025 in aid of ASUK and NCW, well done to you both!
On the 7th June 2025, Sara took on the challenge of walking 26 miles in the pilgrims marathon, Nant gwrtheyrn to aberdaron.
“I am doing this challenge to raise awareness of this ultra-rare disease that affects my 8 year old niece Ella.”
Get in touch and grab your goody pack
Get in touch with Catherine Lewis, if you would like to do fundraising challenge or activity, we have a fundraising goody pack waiting for you.
Email: Catherine.lewis@alstrom.org.uk or call her on 07970 071675
Just Giving is a great place to start by creating your Fundraising platform and share with your friends and families, so they can support you.
https://www.justgiving.com/alstromsyndromeuk
Donations make a huge difference, and we make every penny count, you can make a donation quick and easy on our Just Giving page:
