Alström Syndrome UK

Support for people with Alström Syndrome and their carers

If you are or think you might be affected by Alström syndrome, we recommend that you read this article about us first.

Alström Syndrome UK has three key aims:

to help people with Alström Syndrome to provide support for them, their carers and the professionals who are working with them
to raise awareness amongst both the public and medical professions of Alström Syndrome
to raise funds to promote research into Alström Syndrome

Alström Syndrome and influenza vaccination winter 2009

If you’re unsure what to do concerning flu and swine flu vaccinations this year, please read this general advice given by Dr. Richard Paisey.

Alström Syndrome Booklet (published July 2009)
A guide to greater understanding of this rare condition

For consultants, GPs and other health professionals as well as parents seeking to know more about Alström Syndrome.

Please download a copy here,or alternatively you can request a copy be sent to you by sending an E-mail to Kay Parkinson.

Emergency Numbers

There are two hospitals expert in Alstrom Syndrome, Torbay Hospital which treats over 16s and Birmingham Children’s Hospital which treats under 16s. If you would like to speak to a medical expert in Alstrom Syndrome please contact either:

Dr Richard Paisey, Torbay Hospital: 01803 614567
Prof Tim Barrett, Birmingham Children’s Hospital: 0121 333 9999

Web Mail

Alström Syndrome UK is a registered charity, number 1071196.
Registered Company Number 3557191.

Last updated: 13th January 2010
Medical section updated with information on treatments found useful in Alström Syndrome, plus information concerning the treatment of endocrinological disorders and diabetes.