Our Team


Kerry Leeson-Beevers
-Chief Executive

I joined Alström Syndrome UK (ASUK) in 2003 when it was first suggested that ...

Catherine Lewis
-Operations Manager

I have worked for Alström Syndrome UK in a variety of roles since 2010, ...

Marie McGee
-National Transition Coordinator (part-time)

Steve Scoffield
Steve Scoffield
-Finance Manager

Melissa Crowland
-Wellbeing Coordinator

I am very new to Alström Syndrome, beginning my journey with the condition in ...

Clair Pudaruth
-Care Coordinator

Hello, I’m Clair Pudaruth and I joined the ASUK team in August 2023 as ...

Sarah Oliver
-Care Coordinator

Hello, I’m Sarah Oliver and I am delighted to have become the newest member ...

Breaking Down Barriers Project Team


Derek Sankar
-Community and Inclusion Coordinator

  Please note my working days are Monday – Wednesday.   My name is ...

Cathy Chadwick-Rayner
-Networks and Outreach Coordinator

  Please note my working days are Monday to Thursday. My name is Catherine ...

Board of Trustees


Dr Tarek Hiwot
-ASUK Trustee

Dr Tarek Hiwot, Consultant in Inherited Metabolic Disorders and is our Clinical Lead at ...

Sharon Bates
-ASUK Trustee and Chair

I have worked within the NHS for many years, and now work as a ...

Trevor Parkin
-ASUK Trustee

I was diagnosed with Alström at the age of 39, 11 years ago. My ...

Lexi Line
-ASUK Trustee

I’ve been involved with ASUK for about 18 years. I’m an Alström patient and ...

Dr Tim Barrett
-ASUK Trustee

Prof. Tim Barrett is the Paediatric Clinical Lead for the Alström Service at Birmingham ...

Jane Biglin
-ASUK Trustee

Jane, will already be very familiar to most of you as she has recently ...

Carol Prescott
-ASUK Trustee

Carol, is a Habilitation Specialist as part of the Sensory Needs Team in Bury. ...

Haris Hamid
-ASUK Trustee

Haris is part of the Alström Syndrome community and is very enthusiastic to bring ...

Mokey Yates
-ASUK Trustee

Mokey, recently retired from her job at Ernst & Young (EY) Global. A Chartered ...

Volunteers


Kez Hayat
-ASUK EDI Advisor

Dr. Richard Paisey
Dr. Richard Paisey
-ASUK Volunteer

My work with Alström Syndrome spans 15 years with provision of service and leadership ...