Our Team

Kerry Leeson-Beevers
-Chief Executive

I joined ASUK when my son was diagnosed with the condition. I became chair ...

Ann Chivers
-Executive Director - Alström Global

ASUK is a patient led, resourceful and dynamic charity providing information, support and advice ...

Catherine Lewis
-Office Manager

I have worked for Alstrom Syndrome UK in a variety of roles since 2010, ...

Marie McGee
-National Transition Coordinator (part-time)

Jane Biglin
-Senior Family Support Worker

I joined the ASUK team in August 2016. I thoroughly enjoy meeting and supporting ...

Steve Scoffield
Steve Scoffield
-Finance Manager

Board of Trustees

Trevor Parkin
-Chair and Treasurer

I was diagnosed with Alström at the age of 39, 11 years ago. My ...

Dr. Richard Paisey
Dr. Richard Paisey
-ASUK Trustee

I’m an active member of the ASUK Board of Trustees. My work with Alström ...

Kez Hayat
-ASUK Trustee

Alex Griffiths-Rayson
-ASUK Trustee and Vice-Chair

I’ve been involved with ASUK for about 18 years. I’m an Alström patient and ...

Sharon Bates
-ASUK Trustee

I have worked within the NHS for many years, and now work as a ...

Melissa Crowland
-ASUK Trustee

I was diagnosed with Alström Syndrome when I was 26 years old, and it ...

Dr Tim Barrett
-ASUK Trustee

Prof. Tim Barrett is the Paediatric Clinical Lead for the Alström Service at Birmingham ...