Our Team

Kerry Leeson-Beevers
-Chief Executive

I joined Alström Syndrome UK (ASUK) in 2003 when it was first suggested that ...

Ann Chivers
-Executive Director - Alström Global

ASUK is a patient led, resourceful and dynamic charity providing information, support and advice ...

Catherine Lewis
-Office Manager

I have worked for Alstrom Syndrome UK in a variety of roles since 2010, ...

Marie McGee
-National Transition Coordinator (part-time)

Steve Scoffield
Steve Scoffield
-Finance Manager

Melissa Crowland
-Wellbeing Coordinator

I am very new to Alström Syndrome, beginning my journey with the condition in ...

Clair Pudaruth

Information from Clair will appear here shortly 🙂 I can be contacted by email, ...

Sarah Oliver
-Care Coordinator

Hello, I’m Sarah Oliver and I am delighted to have become the newest member ...

Breaking Down Barriers Project Team

Vanessa Williams
-Patient & Public Involvement & Impact Coordinator

  Please note my working days are Monday – Wednesday.   My name is ...

Derek Sankar
-Community and Inclusion Coordinator

  Please note my working days are Monday – Wednesday.   My name is ...

Cathy Chadwick-Rayner
-Networks and Outreach Coordinator

  Please note my working days are Monday to Thursday. My name is Catherine ...

Board of Trustees

Sharon Bates
-ASUK Trustee and Chair

I have worked within the NHS for many years, and now work as a ...

Dr. Richard Paisey
Dr. Richard Paisey
-ASUK Trustee

I’m an active member of the ASUK Board of Trustees. My work with Alström ...

Dr Tim Barrett
-ASUK Trustee

Prof. Tim Barrett is the Paediatric Clinical Lead for the Alström Service at Birmingham ...

Jane Biglin

Jane, will already be very familiar to most of you as she has recently ...

Carol Prescott
-ASUK Trustee

Carol, is a Habilitation Specialist as part of the Sensory Needs Team in Bury. ...

Haris Hamid

Haris is part of the Alström Syndrome community and is very enthusiastic to bring ...

Mokey Yates

Mokey, recently retired from her job at Ernst & Young (EY) Global. A Chartered ...


Kez Hayat
-ASUK EDI Advisor

Trevor Parkin

I was diagnosed with Alström at the age of 39, 11 years ago. My ...

Alex Griffiths-Rayson

I’ve been involved with ASUK for about 18 years. I’m an Alström patient and ...