Our Team


Kerry Leeson-Beevers
-Chief Executive

I joined Alström Syndrome UK (ASUK) in 2003 when it was first suggested that ...

Ann Chivers
-Executive Director - Alström Global

ASUK is a patient led, resourceful and dynamic charity providing information, support and advice ...

Catherine Lewis
-Office Manager

I have worked for Alstrom Syndrome UK in a variety of roles since 2010, ...

Marie McGee
-National Transition Coordinator (part-time)

Steve Scoffield
Steve Scoffield
-Finance Manager

Sarah Oliver
-Care Coordinator

Hello, I’m Sarah Oliver and I am delighted to have become the newest member ...

Toni Smith
-Care Coordinator

Hello, I’m Toni Smith and I joined the ASUK team as the new Care ...

Breaking Down Barriers Project Team


Vanessa Williams
-Patient & Public Involvement & Impact Coordinator

  Please note my working days are Monday – Wednesday.   My name is ...

Derek Sankar
-Community and Inclusion Coordinator

  Please note my working days are Monday – Wednesday.   My name is ...

Cathy Chadwick-Rayner
-Networks and Outreach Coordinator

  Please note my working days are Monday to Thursday. My name is Catherine ...

Board of Trustees


Sharon Bates
-ASUK Trustee and Chair

I have worked within the NHS for many years, and now work as a ...

Kez Hayat
-ASUK Trustee and Vice Chair

Dr. Richard Paisey
Dr. Richard Paisey
-ASUK Trustee

I’m an active member of the ASUK Board of Trustees. My work with Alström ...

Melissa Crowland
-ASUK Trustee

I was diagnosed with Alström Syndrome when I was 26 years old, and it ...

Dr Tim Barrett
-ASUK Trustee

Prof. Tim Barrett is the Paediatric Clinical Lead for the Alström Service at Birmingham ...

Carol Prescott
-ASUK Trustee

Volunteers


Trevor Parkin
-Volunteer

I was diagnosed with Alström at the age of 39, 11 years ago. My ...

Alex Griffiths-Rayson
-Volunteer

I’ve been involved with ASUK for about 18 years. I’m an Alström patient and ...

Jane Biglin
-Volunteer

I joined the ASUK team in August 2016. I thoroughly enjoy meeting and supporting ...