Our Team

Kerry Leeson-Beevers
-National Development Manager / Family Support Manager

I joined ASUK when my son was diagnosed with the condition. I became chair ...

Ann Chivers
-Chief Executive

ASUK is a patient led, resourceful and dynamic charity providing information, support and advice ...

Catherine Lewis
-Office Manager

I have worked for Alstrom Syndrome UK in a variety of roles since 2010, ...

Marie McGee
-National Transition Coordinator (part-time)

Jane Biglin
-Senior Family Support Worker

I joined the ASUK team in August 2016. I thoroughly enjoy meeting and supporting ...

Steve Scoffield
Steve Scoffield
-Finance Manager

Carrol Birchall
-Senior Family Support Worker

I’m a Senior Family Support worker for ASUK and also the mother of a ...

Asya Choudry
-Community Engagement Manager for Breaking Down Barriers project

Asya works as part of the Breaking Down Barriers project 3 days per week. ...

Board of Trustees

Trevor Parkin
-Chair and Treasurer

I was diagnosed with Alström at the age of 39, 11 years ago. My ...

Dr. Richard Paisey
Dr. Richard Paisey
-ASUK Trustee

I’m an active member of the ASUK Board of Trustees. My work with Alström ...

Kez Hayat
-ASUK Trustee

Alex Griffiths-Rayson
-ASUK Trustee

I’ve been involved with ASUK for about 18 years. I’m an Alström patient and ...

Dawn Allison-Hughes
-ASUK Trustee

Dawn has resigned from the Board as of 1st April 2020. ASUK wish to ...

Sharon Bates
-ASUK Trustee

I have worked within the NHS for many years, and now work as a ...

Melissa Crowland
-ASUK Trustee

I was diagnosed with Alström Syndrome when I was 26 years old, and it ...

Dr Tim Barrett
-ASUK Trustee

Prof. Tim Barrett is the Paediatric Clinical Lead for the Alström Service at Birmingham ...

Dr Elena Riva
-ASUK Trustee

I am the Director of Studies at the University of Warwick Institute For Advanced ...