Catherine Lewis

-Office Manager

I have worked for Alstrom Syndrome UK in a variety of roles since 2010, ...

Liz Loughery – Project Manager

Marie McGee

-National Transition Coordinator (part-time)

Jane Biglin

-Senior Family Support Worker

I joined the ASUK team in August 2016. I thoroughly enjoy meeting and supporting ...

Steve Scoffield

-Finance Manager

Carrol Birchall

-Senior Family Support Worker

I’m a Senior Family Support worker for ASUK and also the mother of a ...

Asya Choudry

-Community Engagement Manager for Breaking Down Barriers project

Asya works as part of the Breaking Down Barriers project 3 days per week. ...

Kez Hayat

-ASUK Trustee

Alex Griffiths-Rayson

-ASUK Trustee

I’ve been involved with ASUK for about 18 years. I’m an Alström patient and ...

Dawn Allison-Hughes

-ASUK Trustee

I am currently working as a Contracts Administrator for a regional construction business.  I ...

Sharon Bates

-ASUK Trustee

I have worked within the NHS for many years, and now work as a ...

Melissa Crowland

-ASUK Trustee

I was diagnosed with Alström Syndrome when I was 26 years old, and it ...

Dr Tim Barrett

-ASUK Trustee

Prof. Tim Barrett is the Paediatric Clinical Lead for the Alström Service at Birmingham ...

Dr Elena Riva

-ASUK Trustee

I am the Director of Studies at the University of Warwick Institute For Advanced ...