Our Team
Kerry Leeson-Beevers
-National Development Manager / Family Support Manager
I joined ASUK when my son was diagnosed with the condition. I became chair ...
Ann Chivers
-Chief Executive
ASUK is a patient led, resourceful and dynamic charity providing information, support and advice ...
Catherine Lewis
-Office Manager
I have worked for Alstrom Syndrome UK in a variety of roles since 2010, ...
Marie McGee
-National Transition Coordinator (part-time)
Jane Biglin
-Senior Family Support Worker
I joined the ASUK team in August 2016. I thoroughly enjoy meeting and supporting ...
Steve Scoffield
-Finance Manager
Carrol Birchall
-Senior Family Support Worker
I’m a Senior Family Support worker for ASUK and also the mother of a ...
Asya Choudry
-Community Engagement Manager for Breaking Down Barriers project
Asya works as part of the Breaking Down Barriers project 3 days per week. ...
Board of Trustees
Trevor Parkin
-Chair and Treasurer
I was diagnosed with Alström at the age of 39, 11 years ago. My ...
Dr. Richard Paisey
-ASUK Trustee
I’m an active member of the ASUK Board of Trustees. My work with Alström ...
Kez Hayat
-ASUK Trustee
Alex Griffiths-Rayson
-ASUK Trustee
I’ve been involved with ASUK for about 18 years. I’m an Alström patient and ...
Dawn Allison-Hughes
-ASUK Trustee
Dawn has resigned from the Board as of 1st April 2020. ASUK wish to ...
Melissa Crowland
-ASUK Trustee
I was diagnosed with Alström Syndrome when I was 26 years old, and it ...
Dr Tim Barrett
-ASUK Trustee
Prof. Tim Barrett is the Paediatric Clinical Lead for the Alström Service at Birmingham ...
Dr Elena Riva
-ASUK Trustee
I am the Director of Studies at the University of Warwick Institute For Advanced ...