Our Team


Ann Chivers
Ann Chivers
-Chief Executive

ASUK is a patient led, resourceful and dynamic charity providing information, support and advice ...

Kerry Leeson-Beevers
Kerry Leeson-Beevers
-National Development Manager / Family Support Manager

I joined ASUK when my son was diagnosed with the condition. I became chair ...

Marie McGee
Marie McGee
-National Transition Coordinator (part-time)

Jane Biglin
Jane Biglin
-Senior Family Support Worker

I joined the ASUK team in August 2016. I thoroughly enjoy meeting and supporting ...

Steve Scoffield
Steve Scoffield
-Finance Manager

Carrol Birchall
-Senior Family Support Worker

I’m a Senior Family Support worker for ASUK and also the mother of a ...

Board of Trustees


Trevor Parkin
Trevor Parkin
-Chair and Treasurer

I was diagnosed with Alström at the age of 39, 11 years ago. My ...

Dr. Richard Paisey
Dr. Richard Paisey
-ASUK Trustee

I’m an active member of the ASUK Board of Trustees. My work with Alström ...

Kez Hayat
Kez Hayat
-ASUK Trustee

Alex Griffiths-Rayson
-ASUK Trustee

I’ve been involved with ASUK for about 18 years. I’m an Alström patient and ...

Dawn
Dawn Mayes
-ASUK Trustee

I am currently working as a Contracts Administrator for a regional construction business.  I ...