NHS Clinics

NHS Clinics

NHS Alström Syndrome Multi-Disciplinary Clinics

In Partnership with the NHS, ASUK are now able to offer specialist medical clinics for people who are affected by Alström Syndrome. Please contact us if you would like to attend. To receive further information or to attend the Children’s clinic please contact: Kerry Leeson-Beevers on 01709 210151 or email kerry.leeson@alstrom.org.uk.


For the adult clinics please contact Catherine Lewis on 07970 071675 or email catherine.lewis@alstrom.org.uk.

We hope that families will be helped by attending one or two clinics per year. Extra Hospital visits can be arranged for specific problems or tests. The clinics include:

  • A carousel of tests and assessments – each person has their own timetable with appointments and tests ranging from cardiology, respiratory tests, diabetes and metabolism and pre-arranged appointments for audiology, psychology, urology and other tests which are deemed necessary
  • A summary of results and recommended therapy would be sent to each family, and their hospital and community carers.
  • A carefully planned set of tests and one blood sample taken at least once per year (providing patient and family are not too upset or young).
  • ASUK will be available throughout the clinics to offer support and information

Accommodation costs will be provided for by the NHS Trusts involved and ASUK can book this accommodation for you.

Children’s Clinics

To be held at Birmingham Children’s Hospital


  • 13th February 2017
  • 8th May 2017
  • 11th September 2017
  • 13th November 2017

Children’s Outreach Clinic in Leeds

  • 10th November 2016

Adult Clinics

To be held at the Queen Elizabeth Hospital, Birmingham


  • 11th and 12th January 2017
  • 12th and 13th April 2017
  • 12th and 13th July 2017
  • 11th and 12th October 2017
  • 8th and 9th November 2017
  • 13th and 14th December 2017

Should dates need to be altered for any reason then everyone shall be informed as soon as possible.

Media Reviewed: March 2017
Next Review: March 2019