NHS Clinics


NHS Clinics

NHS Alström Syndrome Multi-Disciplinary Clinics

In Partnership with the NHS, ASUK are now able to offer specialist medical clinics for people who are affected by Alström Syndrome. Please contact us if you would like to attend. To receive further information or to attend the Children’s clinic please contact: Kerry Leeson-Beevers on 01709 210151 or email kerry.leeson@alstrom.org.uk.

 

For the adult clinics please contact Catherine Lewis on 07970 071 675 or email catherine.lewis@alstrom.org.uk.

We hope that families will be helped by attending one or two clinics per year. Extra Hospital visits can be arranged for specific problems or tests. The clinics include:

  • A carousel of tests and assessments – each person has their own timetable with appointments and tests ranging from cardiology, respiratory tests, diabetes and metabolism and pre-arranged appointments for audiology, psychology, urology and other tests which are deemed necessary
  • A summary of results and recommended therapy would be sent to each family, and their hospital and community carers.
  • A carefully planned set of tests and one blood sample taken at least once per year (providing patient and family are not too upset or young).
  • ASUK will be available throughout the clinics to offer support and information

Accommodation costs will be provided for by the NHS Trusts involved and ASUK can book this accommodation for you.

For more details about the clinics, their purpose and what to expect click here: ASUK Clinic Information Leaflet

For information about the QE Hospital and contact details for clinicians click here: QE Information Leaflet

Children’s Clinics

To be held at Birmingham Children’s Hospital

2019

  • 18th February 2019
  • 13th May 2019
  • 5th August 2019
  • 11th November 2019

2020

  • 20th January 2020
  • 20th April 2020
  • 20th July 2020
  • 19th October 2020

Adult Clinics

To be held at the Queen Elizabeth Hospital, Birmingham

2019

  • 9th and 10th January 2019
  • 27th and 28th February 2019
  • 10th and 11th April 2019
  • 12th and 13th June 2019
  • 9th and 10th October 2019
  • 13th and 14th November 2019

2020

  • 8th and 9th January 2020
  • 26th and 27th February 2020
  • 18th and 19th March 2020 (Transfer clinic)
  • 15th and 16th April 2020
  • 10th and 11th June 2020
  • 14th and 15th October 2020
  • 11th and 12th November 2020

The outreach clinic in Leeds, is generally in November. The date will be released nearer the time.

Should dates need to be altered for any reason then everyone shall be informed as soon as possible.

Media Reviewed: October 2019
Next Review: October 2020