NHS Clinics


NHS Clinics

NHS Alström Syndrome Multi-Disciplinary Clinics

In Partnership with the NHS, ASUK are now able to offer specialist medical clinics for people who are affected by Alström Syndrome. Please contact us if you would like to attend. To receive further information or to attend the Children’s clinic please contact: Kerry Leeson-Beevers on 01709 210151 or email kerry.leeson@alstrom.org.uk.

 

For the adult clinics please contact Elizabeth Loughery on 07517 278 946 or email liz.loughery@alstrom.org.uk.

We hope that families will be helped by attending one or two clinics per year. Extra Hospital visits can be arranged for specific problems or tests. The clinics include:

  • A carousel of tests and assessments – each person has their own timetable with appointments and tests ranging from cardiology, respiratory tests, diabetes and metabolism and pre-arranged appointments for audiology, psychology, urology and other tests which are deemed necessary
  • A summary of results and recommended therapy would be sent to each family, and their hospital and community carers.
  • A carefully planned set of tests and one blood sample taken at least once per year (providing patient and family are not too upset or young).
  • ASUK will be available throughout the clinics to offer support and information

Accommodation costs will be provided for by the NHS Trusts involved and ASUK can book this accommodation for you.

For more details about the clinics, their purpose and what to expect click here: ASUK Clinic Information Leaflet

For information about the QE Hospital and contact details for clinicians click here: QE Information Leaflet

Children’s Clinics

To be held at Birmingham Children’s Hospital

2018

  • 29th January 2018
  • 14th May 2018
  • 17th September 2018
  • 12th November 2018

Children’s Outreach Clinic in Leeds

  • 15th November 2018

2019

  • 18th February 2019
  • 13th May 2019
  • 5th August 2019
  • 11th November 2019

 

Adult Clinics

To be held at the Queen Elizabeth Hospital, Birmingham

2018

  • 24th and 25th January 2018
  • 21st and 22nd March 2018
  • 11th and 12th April 2018
  • 27th and 28th June 2018
  • 26th and 27th September 2018
  • 7th and 8th November 2018

2019

  • 9th and 10th January 2019
  • 27th and 28th February 2019
  • 10th and 11th April 2019
  • 10th and 11th July 2019
  • 9th and 10th October 2019
  • 13th and 14th November 2019

Should dates need to be altered for any reason then everyone shall be informed as soon as possible.

Media Reviewed: March 2017
Next Review: March 2019