Latest News


Hot off the press…Winter Newsletter, out now!

Date: 20 Nov, 2020  No Comments  Alstrom Admin

As the weather is beginning to get crisp and cold, grab something warm and take 5 minutes to read our latest newsletter. Filled with lots of stories of what the Alstrom Community has been up to and how ASUK has been supporting families through these difficult times. Find out how you can register for the


Join us for the AGM

Date: 19 Oct, 2020  No Comments  Alstrom Admin

Alström Syndrome UK are pleased to announce our Annual General Meeting will take place on Wednesday 18th November 2020 from 7:00-8:00pm via teleconference. The Board of Trustees and Chief Executive will all be in attendance. At the AGM we will celebrate the achievements of the organisation and family members over the last year. We will present


Registration is now open!

Date: 29 Sep, 2020  No Comments  Alstrom Admin

Alstrom Syndrome Global Conference 4th and 5th December 2020 In true 2020 style – Let’s bring the Alstrom global community together for the first ever, virtual Family and Professional Conference. We will tour the world, with insights from AS experts and inspiring personal presentations from families. There will also be plenty of time to network


Time to Talk – Organ Donation

Date: 09 Sep, 2020  No Comments  Alstrom Admin

To coincide with Organ Donation Week from the 7th – 13th September 2020,  we would like to shine a spotlight on Organ Donation – looking at the right information to help you make the right choices for you and your family. Sifting through the myths and getting to the facts of the matter. The NHS


Hot off the press… Summer newsletter out now!

Date: 17 Aug, 2020  No Comments  Alstrom Admin

As the weather is hotting up, pop your feet up, grab something chilled and take 5 minutes to read our latest newsletter.  Check out Melissa cooking up a storm in the kitchen and read how equipment is making a real difference in our families lives. You can download your pdf copy HERE or as a word


Big Eid – Celebrations!

Date: 24 Jul, 2020  No Comments  Alstrom Admin

Time to celebrate! On Friday 31st July Muslims around the world will be celebrating Eid Ul-Adha, the second of the annual Eid festivals, referred to as ‘Big Eid.’ This festival occurs directly after the month of Hajj in the Islamic Calendar. Hajj is the great Pilgrimage every Muslim must attend once in their lifetime, it