Latest News


A huge THANK YOU to Children in Need!

Date: 01 Aug, 2018  No Comments  ASUK USER

A huge THANK YOU to Children in Need! ASUK are committed to improving services for our young people and their families. In 2015, we were lucky enough to receive 3 years funding from Children in Need to provide support to young people to support them through transition from clinics at Birmingham Children’s Hospital to the


Thank you Wickersley Cricket Club!

Date: 18 Jul, 2018  No Comments  ASUK USER

Alström Syndrome UK would like to extend our thanks to Wickersley Cricket Club!  Yet again members of the club have very kindly donated £1,916.66 to Alström Syndrome UK following a successful fundraising event. 17 year old Kion (pictured left), who is affected by Alström Syndrome accepted the donation earlier this month. We are all very


SAVE THE DATE!

Date: 13 Jun, 2018  No Comments  ASUK USER

The countdown is on for the ASUK family fun and information day on Saturday 13th October 2018. Please SAVE THE DATE and watch this space for updates on the location, agenda and how to book!


ASUK Big Activity Challenge

Date: 07 Jun, 2018  No Comments  ASUK USER

What is the Big Activity Challenge? ASUK are now offering adults (18’s and over) with Alström Syndrome, the chance to try a new activity. You can apply for between £50-£500 to pay for the activity, all we ask you do is provide some photographs and write an article for publication in the ASUK newsletter (within


A quiz show STAR!

Date: 31 May, 2018  No Comments  ASUK USER

A quiz show star! Well done Ellie on your SUPERB performance on the BBC show Hardball! Click HERE to view the show in full!


Direct Payments

Date: 31 May, 2018  No Comments  ASUK USER

Looking for more choice & control over how your care & support is arranged? Then you need to opt for Direct Payments. Direct payments give you more flexibility over how your care and support is arranged and provided. If, after a care needs assessment, your council decides you need support, you will receive a personal budget. You