Latest News


Join us for the Covid-19 Shielding webinar

Date: 30 Jun, 2020  No Comments  Alstrom Admin

Shielding Webinar 1st July 2020 What does the new guidance mean for me?   On Wednesday 1st July 2020 we will be hosting a webinar with our lead clinicians from the Alström clinics Dr Tarek Hiwot and Prof. Tim Barrett to answer your questions about the latest shielding guidance and what it means for you. Please find


Connect together for the Healthy Hearts webinar

Date: 09 Jun, 2020  No Comments  Alstrom Admin

Join us and connect together Healthy Hearts Webinar Dr Rick Steeds, Cardiac Consultant from the Alstrom specialist team will be joining us on Thursday 11th June 2020 at 14:00 pm to discuss his top tips for a healthy heart. This will include guidance around coronavirus and ways we can try and stay healthy. As always there will be


Ramadan at home

Date: 05 May, 2020  No Comments  Alstrom Admin

WHAT IS RAMADAN? In 2020, Ramadan will be from around the 23rd/24th April for 29/30 days. It is the holiest month of the year for Muslims as it is when the Qur’an was revealed to the Prophet Muhammad (PBUH). During the month of Ramadan, Muslims around the world will fast, meaning they won’t eat or


Cuppa and Catch up

Date: 21 Apr, 2020  No Comments  Alstrom Admin

Thank you to everyone who joined us for a cuppa and catch up on the 23rd April 2020. It was lovely to see so many families joining together virtually from across the globe and sharing their top tips on how they are keeping entertained whilst at home. Let’s get together for our next cuppa and catch up


Healthy Mind, Healthy Body

Date: 14 Apr, 2020  No Comments  Alstrom Admin

Life in Isolation Keeping your mind and body healthy   Do you want to share your top tips for how you are keeping healthy indoors or do you have questions and queries about how to actually do this? Well, Alstrom Syndrome UK will be running their next virtual get together for families to look at how to keep


Hammer Down!

Date: 24 Mar, 2020  No Comments  ASUK USER

Hammer Down Hassan When you are thinking of staying at home for many weeks, it can be a daunting prospect but why not check out this uplifting film. Let’s look for ways we can keep ourselves active and healthy. Share your ideas with us and we will bring together ideas and information to keep us