Latest News


Exciting News… New CEO!!

Date: 29 Oct, 2021  No Comments  Alstrom Admin

Alström Syndrome UK announces new Chief Executive Officer It is with great pleasure that we announce the appointment of our new Chief Executive Officer, Kerry Leeson-Beevers. Many of you will know Kerry as a passionate advocate for those affected by Alström Syndrome, not only being Mum to Kion and Cole, but helping to develop the charity


Join our team!

Date: 23 Sep, 2021  No Comments  Alstrom Admin

We are on the hunt for a Alström Syndrome Care Coordinator   Do you relish the challenge of making a positive impact on people’s lives supporting individuals with a rare disease and those who love and care for them? If you do, then come and join our award-winning charity, Alström Syndrome UK (ASUK) which provides


Summer newsletter out now!

Date: 04 Aug, 2021  No Comments  Alstrom Admin

Well at last summer is finally here!! Grab something refreshing to drink and take 5 minutes to read these uplifting family stories in our latest summer newsletter. Please download your PDF version HERE or alternatively, a plain text version is HERE   Please get in touch with Catherine Lewis if you would like an article to be


What does the new lock-down mean for you?

Date: 06 Jan, 2021  No Comments  Alstrom Admin

New Year, brings another new lockdown! As I am sure you are all aware, the Government has introduced new national restrictions which means that from 5th January 2021, we must all stay at home and avoid meeting people we do not live with, except for specific purposes. I am sure once again you all have your own worries, concerns and questions about what this


Hot off the press…Winter Newsletter, out now!

Date: 20 Nov, 2020  No Comments  Alstrom Admin

As the weather is beginning to get crisp and cold, grab something warm and take 5 minutes to read our latest newsletter. Filled with lots of stories of what the Alstrom Community has been up to and how ASUK has been supporting families through these difficult times. Find out how you can register for the


Time to Talk – Organ Donation

Date: 09 Sep, 2020  No Comments  Alstrom Admin

To coincide with Organ Donation Week from the 7th – 13th September 2020,  we would like to shine a spotlight on Organ Donation – looking at the right information to help you make the right choices for you and your family. Sifting through the myths and getting to the facts of the matter. The NHS