Latest News

Join us for the AGM

Date: 03 Oct, 2023  No Comments  Alstrom Admin

Invitation to the ASUK Annual General Meeting       You are invited! Alström Syndrome UK are pleased to announce our Annual General Meeting will take place virtually on Wednesday 22nd November 2023 from 7-8pm (GMT, UK time). The Board of Trustees and Chief Executive will all be in attendance. At the AGM we will celebrate

Invitation to Inaugural Lecture: Alstrom Past, Present and Future

Date: 13 Apr, 2023  No Comments  Alstrom Admin

In celebration of Alström Syndrome UK turning 25, AS Global is pleased to announce the world’s first annual lecture all about Alström Syndrome. Alström Syndrome Past, Present and Future. You are invited to this, the first inaugural Lecture all about Alström Syndrome. This free virtual lecture will investigate the history of Alström Syndrome, what progress

Join our team!

Date: 23 Mar, 2023  No Comments  Alstrom Admin

We are on the hunt for a Alström Syndrome Care Coordinator   Do you relish the challenge of making a positive impact on people’s lives, supporting individuals with a rare condition and those who love and care for them? If you do, then why not apply to join the team at Alström Syndrome UK (ASUK)

AS Global ‘Managing and Reviewing Medication’ Webinar

Date: 13 Mar, 2023  No Comments  Alstrom Admin

Managing and Reviewing Medication AS Global is holding it’s next webinar all about Medications… What matters to you as a patient and what matters to Moms, Dads and Carers of children affected by Alström Syndrome. Antonio Ochoa-Ferraro, who is a Specialist Pharmacist from University Hospitals Birmingham NHS Foundation Trust England, will be discussing managing medicines. Come

Rare Disease Day 2023!

Date: 28 Feb, 2023  No Comments  Alstrom Admin

Happy Rare Disease Day! This day falls on the last day of February and aims to raise awareness and generate change for the 300 million people worldwide living with a rare disease, their families and carers. Watch this years film below, highlighting the inequality faced by so many: Light up for Rare Disease Day! Light

People Power!

Date: 08 Feb, 2023  No Comments  Alstrom Admin

A Truly Accessible World for Everyone – People Power! Imagine for a moment – that you walk into your usual supermarket and every item has blank labels on them, and you can’t tell what anything in the boxes, tins and packaging is! Well, welcome to the world for those who are affected by visual impairment…