Latest News

Have your voice heard on Rare Disease Day

Date: 14 Jan, 2026  No Comments  Catherine Admin

Rare Disease Day – All About Equity Rare Disease Day falls on the last day of February each year – 28th February 2026 (or on a leap year the rarest

Join the ASUK Family Festival

Date: 13 Jan, 2026  No Comments  Alstrom Admin

Our First Family Festival  We are absolutely delighted to share some exciting news for the summer ahead! Family Festival! Have a Go Sports Event A Celebration of Possibilities, Connections and

Planning for the Future

Date: 06 Nov, 2025  No Comments  ASUK USER

  This is often a topic, which we choose to leave for another day, but planning for the future is important. The charity, Contact for families with disabled children have

Covid-19 Vaccine Autumn Info

Date: 05 Nov, 2025  No Comments  ASUK USER

Information about the Covid-19 Vaccination Autumn 2025 At this time of year, many of you will have had information about getting your flu vaccination, but you may be wondering why

Get Involved in the RareCare Project: Shaping the Future of Rare Disease Care

Date: 28 Oct, 2025  No Comments  ASUK USER

RARECARE PROJECT: Help Shape the Future of Rare Disease Care in England       We are inviting people living with rare conditions and/or their carers to take part in interviews

Hot off the press… Summer newsletter out now!

Date: 14 Aug, 2025  No Comments  ASUK USER

Whilst the weather hots up once again, grab something cold and refreshing to drink and sit down for 5 minutes to read the latest ASUK Community Newsletter. Summer 25 Newsletter