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Winter newsletter out now!

Date: 20 Dec, 2023  No Comments  Alstrom Admin

Wising you all a lovely time over the festive period Grab something warm to drink and take 5 minutes to read these uplifting family stories in our latest Winter newsletter. Please download your PDF version HERE   Please get in touch with Catherine Lewis if you would like an article to be included in our


Register NOW for the AS Global Conference

Date: 14 Dec, 2023  No Comments  Alstrom Admin

Come together with the AS Global Community on the 27th January 2024 from 13:00 – 19:00 pm (UK time, GMT) for the virtual AS Global Conference 2024. AS Global Conference 2024: Sharing Knowledge, Inspiring Hope Hear about the latest research initiatives, inspirational stories from the community, top tips to stay healthy and thrive as well as


Join us for the AGM

Date: 03 Oct, 2023  No Comments  Alstrom Admin

Invitation to the ASUK Annual General Meeting       You are invited! Alström Syndrome UK are pleased to announce our Annual General Meeting will take place virtually on Wednesday 22nd November 2023 from 7-8pm (GMT, UK time). The Board of Trustees and Chief Executive will all be in attendance. At the AGM we will celebrate


Invitation to Inaugural Lecture: Alstrom Past, Present and Future

Date: 13 Apr, 2023  No Comments  Alstrom Admin

In celebration of Alström Syndrome UK turning 25, AS Global is pleased to announce the world’s first annual lecture all about Alström Syndrome. Alström Syndrome Past, Present and Future. You are invited to this, the first inaugural Lecture all about Alström Syndrome. This free virtual lecture will investigate the history of Alström Syndrome, what progress


Join our team!

Date: 23 Mar, 2023  No Comments  Alstrom Admin

We are on the hunt for a Alström Syndrome Care Coordinator   Do you relish the challenge of making a positive impact on people’s lives, supporting individuals with a rare condition and those who love and care for them? If you do, then why not apply to join the team at Alström Syndrome UK (ASUK)


AS Global ‘Managing and Reviewing Medication’ Webinar

Date: 13 Mar, 2023  No Comments  Alstrom Admin

Managing and Reviewing Medication AS Global is holding it’s next webinar all about Medications… What matters to you as a patient and what matters to Moms, Dads and Carers of children affected by Alström Syndrome. Antonio Ochoa-Ferraro, who is a Specialist Pharmacist from University Hospitals Birmingham NHS Foundation Trust England, will be discussing managing medicines. Come