In 2015 and 2018, we secured funding from Children in Need to provide support by providing fun activities and one to one support through transition, ensuring that young people who are affected are less isolated, healthier and able to better manage change.
This funding has enabled our Transition Coordinator, Marie McGee to continue to work with young people and their families on all areas of growing up.
Ensuring that all youngsters are supported to manage change, develop skills and confidence and unleash their potential.
Marie explains more in these short videos:
The project has enabled young people to unleash their potential through activities which they never thought possible, such as driving a car or flying a plane!
It has also brought families together to enjoy Foodie Fun Friends Clubs, learning more about healthy foods and fun exercises to enjoy.
You can find more about these activities on the ‘Having Fun’ page.
ASUK have now developed a range of T-KASH Transition resources which have been developed by young people for young people.
T-KASH (Transition-Knowledge And Skills in Health) are FREE resources created by young people (YP) from the Alström Syndrome UK Hear My Voice Youth Forum. They are for YP, families and professionals to help them understand transition in health settings.
The resources aim to:
- Draw attention to the knowledge and skills YP should be developing to manage their healthcare, while having the best life possible
- Prepare YP/families for identifying and coping with change at key points in their lives
- Supporting YP to plan for their future and cope with their eventual transfer/settling into adult services