Date: 06 May, 2026
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We are delighted to announce that Alström Syndrome UK has achieved the PIF TICK trust mark, the UK-wide Quality Mark for trusted health information.
The PIF TICK, developed by the Patient Information Forum (PIF), is awarded to organisations that meet strict standards for producing health information that is:
Achieving the PIF TICK demonstrates our ongoing commitment to providing high-quality, trustworthy information and support for individuals diagnosed with Alström Syndrome, their families, carers, and professionals.
At Alström Syndrome UK, we understand how important it is for people living with a rare condition to have access to accurate and reliable information. This recognition reflects the care, collaboration, and dedication that goes into developing our resources and support materials.
We are incredibly proud to join a community of organisations across the UK who are committed to improving the quality of health information available to patients and families.
We would like to thank everyone who has contributed to this achievement and continues to support our work.
You can learn more about the PIF TICK and what it stands for by visiting the PIF TICK website
https://piftick.org.uk/
Together, we remain committed to supporting the Alström Syndrome community with trusted information, compassionate personalised support, and continued advocacy.

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