Latest News


AS Global ‘Managing and Reviewing Medication’ Webinar

Date: 13 Mar, 2023  No Comments  Alstrom Admin

Managing and Reviewing Medication AS Global is holding it’s next webinar all about Medications… What matters to you as a patient and what matters to Moms, Dads and Carers of


People Power!

Date: 08 Feb, 2023  No Comments  Alstrom Admin

A Truly Accessible World for Everyone – People Power! Imagine for a moment – that you walk into your usual supermarket and every item has blank labels on them, and


Winter newsletter is out now!

Date: 10 Jan, 2023  No Comments  Alstrom Admin

Pop your feet up for five minutes and read about the latest ASUK news… Including how to get involved next year in ASUK turning 25 and plenty of useful resources


ASUK Turns 25!

Date: 14 Dec, 2022  No Comments  Alstrom Admin

ASUK will be having a silver anniversary year. ASUK will be 25 years old next year!! – it is going to be a year of get togethers and celebrations starting


Summer Newsletter is Out Now!!

Date: 05 Oct, 2022  No Comments  Alstrom Admin

It may feel like Summer is a distant memory – but here comes the ASUK Summer newsletter – full of uplifting articles of what our families have been up to


World Alström Syndrome Day is HERE!!

Date: 03 May, 2022  No Comments  Alstrom Admin

3rd May 2022 Today is the first World Alström Syndrome Day!! Celebrating Carl Henry Alström who was born on the 3rd May & discovered the Syndrome. Let’s learn more about this