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Get Involved in the RareCare Project: Shaping the Future of Rare Disease Care
Date: 28 Oct, 2025
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RARECARE PROJECT: Help Shape the Future of Rare Disease Care in England We are inviting people living with rare conditions and/or their carers to take part in interviews
Whilst the weather hots up once again, grab something cold and refreshing to drink and sit down for 5 minutes to read the latest ASUK Community Newsletter. Summer 25 Newsletter
We Care about Equality for Our Carers This week is Carers Week, from the 9th – 15th June 2025 The most recent Census 2021 found that there are 5.8 million unpaid
Check you’re receiving the right support There have been some payment increases for those who receive benefits from the Department of Work & Pensions (correct as of April 2025). If
Celebrate World AS Day To celebrate World Alström Day we will be holding a Research Ready Webinar, where alongside Professor Tim Barrett, we will be able to tell you all
Press Release Alström Research Developments In October 2024, the Alström Syndrome UK (ASUK) Medical and Scientific Advisory group (MSAG) met to discuss progress in Alström Syndrome (AS) research and to