Take the Leap this Summer!

Join us this summer for an incredible adventure!

This Summer, ASUK is calling on our supporters to join our fundraising campaign.

No challenge is too big or small.
From sponsored walks and fun runs to adrenaline-pumping skydives, this is your chance to do something amazing—for yourself and for others.

Together, we can raise funds and make a HUGE difference for our small but mighty community.

This summer, every step taken, cake baked, and challenge completed helps us support those diagnosed with Alström Syndrome.

With your help, we can:

• Offer personalised, compassionate support to families facing a tough diagnosis.

• Provide access to specialist clinics and expert care.

• Develop research initiatives and bring professionals together to improve understanding and treatment.

• Bring families together so no one feels alone on their journey.

Challenge yourself because when a condition is ultra-rare, every voice, every pound, every event matters more than ever.

Join us this summer, let’s have some fun, connect together and support the Alström Syndrome Community.

How we can help?

• We can send you a fundraising pack, with lots of goodies.
• We can chat with you about ideas and how to make them a reality.
• We can support you to set-up a JustGiving page for your donations.
• We can help spread the word by sharing your fundraising activities on our social media channels.

Get in touch with Catherine who can support you throughout, by email catherine.lewis@alstrom.org.uk or call on 07970 071675 she can’t wait to hear from you!

Here are some of our first challenges!

24 hour fitness challenge!
Millie’s doing an incredible 24 hour fitness challenge which will begin at 7.30pm on Sunday 15th June finishing at 7.30pm on Monday 16th June and the donations will be split between ASUK and the residential school/college New College Worcester: https://www.justgiving.com/campaign/24hourchallenge

 

Take the Leap!
We are also planning a skydive in the Summer – let us know if you are interested in taking part!!

 

You can also find lots more ideas on our fundraising page HERE

Thank you to everyone who continues to support our community and our vital work.