Date: 09 Apr, 2026
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Carl Henry Alström was a Swedish psychiatrist who first identified and described Alström Syndrome in 1959. His work brought attention to this rare genetic condition, helping to improve understanding, diagnosis, and care for those affected.
Today, his legacy lives on through continued research, clinical care, and the global community working to support individuals and families living with Alström Syndrome. On World Alström Day, celebrated on the 3rd May Carl Henry Alström’s birthday, we recognise his contribution and raise awareness of this rare condition.
How you can get involved
This year, we are inviting our community to come together and raise awareness across the world.
On 3rd May 2026, you can take part by:
A social media pack will be available on the Alström Global area of the website, with ready-made graphics and messages for you to download and share.
Together, we can make Alström Syndrome more visible and help ensure that no one feels alone.
A rare condition. A global community.

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