Hot off the press… Spring newsletter out now!

Whilst the weather begins to warm up once again, grab something cold and refreshing to drink and sit down for 5 minutes to read the latest ASUK Community Newsletter.

In this edition, you can read about Hannah’s incredible sailing adventure and read Melissa’s beautiful poetry. You can also find out about the time when a pop star and Leicester City football team had the privilege of meeting AJ and Teddy! These are just a few examples of the confidence, resilience and determination that we continue to see shining through our wonderful Alström community.

We are proud to share updates from Rare Disease Day 2026, where the theme of ‘Equity’ has encouraged important discussions about fairness in healthcare, education and everyday life. Listening to people with lived experiences guides everything we do at ASUK, and we will continue to amplify your voices as we work towards a more inclusive future.

We are also introducing some new opportunities to get involved, including our new book club and upcoming ‘Beyond Sight’ series sharing experiences of life after sight loss. These initiatives are all about connection and creating spaces where people feel heard, supported and inspired.

Please download your copy HERE

Please do let us know if you would like a copy in an alternative format.

Get in touch with Catherine Lewis if you would like an article to be included in our next edition
Catherine.lewis@alstrom.org.uk