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Date: 25 Jul, 2024 Dr Tarek Hiwot, Consultant in Inherited Metabolic Disorders and is our Clinical Lead at the AS Specialist Multi-Disciplinary Adult Clinic in Birmingham. Tarek is very active in the AS Community offering advice, guidance and forging ahead with research projects.
You can contact Derek through Catherine Lewis Email: catherine.lewis@alstrom.org.uk Tel: 07970 071675 My name is Derek Sankar, I am passionate about applying reflective practice and empowerment approaches to engage and work alongside highly excluded communities building sustainable, resilient, thriving organisations and collaborations. I bring over 30 years of experience, developing and delivering services and
Hi, my name is Sophie and I’m delighted to have joined the Alström Syndrome UK team, as the Breaking Down Barriers Network, Lived Experience Coordinator. I am passionate about health advocacy and science engagement, particularly with underrepresented groups. I believe that science and health should be accessible and inclusive. My interest in genetics stems from my own
I have worked within the NHS for many years, and now work as a Practice Manager at a medical centre in Devon. This involves the day to day running of our practice to provide patient care and planning future service developments. I hope to bring my knowledge of healthcare, NHS systems and my drive
I was diagnosed with Alström at the age of 39, 11 years ago. My diagnosis took 3 – 4 years to reach a conclusion at which point I was thankfully referred to a new consultant, Tarik Hiwot, with further tests and an invitation to attend a clinic in Torbay, with Dr Richard Paisey. Here I