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ASUK News, Views and Useful Links!

Date: 15 Oct, 2015  No Comments  adm1n

You can find our latest News, Views and Useful links here ASUK would love to hear from you, send us your news, articles or any links that you think others would find useful.  Get in touch by email Catherine.lewis@alstrom.org.uk or give me a call on 01803 613117. Please feel free to circulate our News, Views


Rare Disease Report Launched!

Date: 15 Oct, 2015  No Comments  adm1n

On the 28th February (Rare Disease Day!) the All Party Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions published a report calling on the Department of Health to implement the Strategy for Rare Diseases and improve services for people affected by rare conditions. ASUK were actively involved in this inquiry, Kerry Leeson-Beevers was involved to


Happy Rare Disease Day!

Date: 15 Oct, 2015  No Comments  adm1n

Today, 28th February 2017 is Rare Disease Day. Rare Disease Day takes place on the last day of February every year to raise awareness about rare diseases and their impact on patients lives. There are many events which take place around the world. This year’s theme is ‘Research’ with the slogan ‘With research, the possibilities