Text Size  A-  A  A+


Kerry Leeson-Beevers and Catherine Lewis work full time for ASUK, offering family support, raising funds, organizing and offering advice.

Please feel free to get in touch.

Registered Address

Alström Syndrome UK
31 Shearwater Drive

Martin Henwood
Interim Chief Executive Officer
Martin works part-time mainly on a Friday
Tel 01789 490630
Mobile 07989 782823
Email Martin

Kerry Leeson-Beevers

Kerry Leeson-Beevers

National Development Manager
Family Support Officer
Asian Family Liaison Officer
Tel 01709 210151
Mobile 07716 135940
Email Kerry

Catherine Lewis 

Award CL crop

Office Manager
Family Support Officer
Tel 01803 613117
Mobile 07970 071675
Email Catherine

Iram Shah


Family Support Manager (part-time)
Asian Mentoring Assistant
Iram is fluent in Urdu and Punjabi
Mobile 07988 237664
Email Iram

John Parkinson

Photograph of John Parkinson

Family Liaison Officer (part-time)
Tel 01803 409952
Mobile 07971065992
Email John

Marie McGee

Marie McGee

National Transition Coordinator (part-time)
Marie works part-time, normally on a Friday to offer transition support to young people and their families
Tel 07812 173953
Email Marie

Steve Coffield (part-time)
Finance Manager
Email Steve


Michelle Hough
Michelle and Millie Hough

Publicity and Awareness
Tel 01872 553067
Email Michelle

Vice Chair

Trevor Parkin
Family Support
Tel 0121 5011743
Email Trevor


Alexandra Rayson

Alex award small

Tel 07854 876692
Email Alex

Julie Beck

Julie Beck
Tel  01423 888772
Email Julie

Dawn Mayes

dawn Mayes (1)

Tel 077918 73848
Email Dawn

Kez Hayat

Kez Trustee

Tel: 07717 784525
Email Kez

Dr. Richard Paisey

Crop RichardEmail Richard

Non-Executive Directors and Advisors

Non-Executive Directors can be contacted through Kerry Leeson-Beevers
Tel 01709 210151

Rob Semple – ASUK Medical and Scientific Chair

Top of Page

Media Reviewed: August 2015
Next Review: August 2017