Contact
Kay Parkinson works full time for ASUK, raising funds, organizing, and offering advice. She is the first point of contact for almost any enquiry. If you wish to talk to someone who suffers with Alström Syndrome, feel free to contact Kevin Goodwin.
Address
Alström Syndrome UK
49 Southfield Avenue
Paignton
S. Devon
TQ3 1LH
Staff
Kay Parkinson
Chief Executive Officer
Tel 01803 524238
Email Kay
John Parkinson
Family Liaison Officer
Email John
Kerry Leeson-Beevers
Development Manager
Asian Family Liaison Officer
Tel 01709 210151
Mobile 07716 135940
Email Kerry
Catherine Lewis
Child Development Officer
Tel 01803 613117
Mobile 07970 071675
Email Catherine
Iram Shah
Asian Mentoring Scheme Project Assistant
Mobile 07988 237664
Email Iram
Fundraiser
Julia Scott
Phil Leeson
Treasuer
Directors
Kevin Goodwin
Webmaster
Tel 01625 466109
Email Kevin
Jane Entwistle
Child Protection
Tel 01962 623476
Email Jane
Mark Millais
Fundraising and Advocate for Independent living
Tel 07780 700090
Email Mark
Michelle Hough
Fundraising and Awareness of organ donation and transplants for our families
Tel 01872 553067
Email Michelle
Alexandra Rayson
Social Networking and Young Adult Co-ordinator
Tel 07540 543637
Email Alex
Lesley Porter
Transition for young patients and their families
Tel 0121 2404817
Email Lesley
Advisors
Dr Mike Hales
Grants Advisor
Tel 01803 843227
Email Mike
Non-Executive Directors
Non-Executive Directors can be contacted through Kay Parkinson
Tel 01803 524238
Dr Richard Paisey – Chairman. Email Dr Paisey
Dr Cathy Carey
Dr. Dan Jagger
Dr. Tarek Hiwot
Dr Tim Barrett
