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NHS Clinics

NHS Alström Syndrome Multi-Disciplinary Clinics

In Partnership with the NHS, ASUK are now able to offer special multi-disciplinary clinics for people with Alström Syndrome. Please contact us if you would like to attend.

To receive further information or to attend the Children’s clinic please contact: Kerry Leeson-Beevers on 01709 210151 or email kerry.leeson@alstrom.org.uk

For the adult clinics please contact Catherine Lewis on 01803 613117 or email catherine.lewis@alstrom.org.uk

We hope that families will be helped by attending one or two clinics per year. Extra visits to either site for specific problems could also be arranged. The clinics include:

  • A carousel of tests and assessments would be timetabled for each person with an hour for each of cardiology, respiratory tests, diabetes and metabolism and prearranged appointments for audiology/psychology/urology.
  • A summary of results and recommended therapy would be sent to each family, and their hospital and community carers.
  • A carefully planned set of tests and one blood sample taken at least once per year (providing patient and family are not too upset or young).
  • ASUK will be available throughout the clinics to offer support

Accommodation costs will be provided for by the NHS Trusts involved and ASUK can book this accommodation for you.

Children’s Clinics
To be held at Birmingham Children’s Hospital

2017

13th February 2017
8th May 2017
11th September 2017
13th November 2017

Children’s Outreach Clinic in Leeds

10th November 2016

Adult Clinics
To be held at the Queen Elizabeth Hospital, Birmingham

2017

11th and 12th January 2017
12th and 13th April 2017
12th and 13th July 2017
11th and 12th October 2017
8th and 9th November 2017
13th and 14th December 2017

Should dates need to be altered for any reason then everyone
shall be informed as soon as possible.

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Media Reviewed: August 2015
Next Review: August 2017