NHS Clinics
NHS Alström Syndrome Multi-Disciplinary Clinics 2012
The NHS are now offering special clinics for people with Alström Syndrome. Please contact us if you would like to attend.
We hope that families will be helped by attending one or two clinics per year. Extra visits to either site for specific problems could also be arranged. The clinics include:
- A carousel of tests and assessments would be timetabled for each person with an hour for each of cardiology, respiratory tests, diabetes and metabolism and prearranged appointments for audiology/psychology/urology.
- A summary of results and recommended therapy would be sent to each family, and their hospital and community carers.
- A carefully planned set of tests on one blood sample at least once per year (providing patient and family not too upset or young).
Accommodation costs will be provided for by the NHS Trusts involved.
Children’s Clinics 2012
To be held at Birmingham Children’s Hospital:
26th March
14th May
6th August
22nd October
Adult Clinics 2012
To be held at Birmingham Queen Elizabeth Hospital:
15th and 16th May
9th and 10th August
22nd and 23rd October
Transition Clinic 2012
There is to be a transition clinic held at Birmingham Queen Elizabeth Hospital for adolescent patients on the 27th and 28th March, following the ASUK annual conference. Please email either Kerry or Catherine for more information.
Should dates need to be altered for any reason then everyone shall be informed as soon as possible.
