Latest News


Beat the Heat

Date: 22 Jun, 2026  No Comments  Alstrom Admin

BEAT THE HEAT! The UK is bracing itself for another heatwave, and as these seem to be occurring more frequently, we’ve pulled together some top tips to help keep you


Young Champion Award Winner

Date: 17 Jun, 2026  No Comments  Catherine Admin

Celebrating AJ – Young Champion Award Winner! We are incredibly proud to congratulate AJ on receiving the Young Conqueror Award in recognition of his hard work, dedication, and commitment to


ASUK Achieves PIF TICK Quality Mark

Date: 06 May, 2026  No Comments  Catherine Admin

Alström Syndrome UK Achieves PIF TICK Quality Mark for Trusted Health Information We are delighted to announce that Alström Syndrome UK has achieved the PIF TICK trust mark, the UK-wide


Hot off the press… Spring newsletter out now!

Date: 15 Apr, 2026  No Comments  Catherine Admin

Whilst the weather begins to warm up once again, grab something cold and refreshing to drink and sit down for 5 minutes to read the latest ASUK Community Newsletter. In


World AS Day – 3rd May 2026!

Date: 09 Apr, 2026  No Comments  Catherine Admin

Join Together on World Alström Day – 3rd May 2026 Carl Henry Alström was a Swedish psychiatrist who first identified and described Alström Syndrome in 1959. His work brought attention


Jetting off – don’t forget to get covered!

Date: 22 Jan, 2026  No Comments  Catherine Admin

Travel Insurance for pre-existing medical conditions  We know at this time of year many of you will be longing for warmer climates and starting to book those holidays! It can