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Get Involved in the RareCare Project: Shaping the Future of Rare Disease Care
Date: 28 Oct, 2025
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RARECARE PROJECT: Help Shape the Future of Rare Disease Care in England We are inviting people living with rare conditions and/or their carers to take part in interviews and focus groups for the RareCare project. This research is part of an independent evaluation of England’s Rare Disease Framework and Action Plans. We want
Whilst the weather hots up once again, grab something cold and refreshing to drink and sit down for 5 minutes to read the latest ASUK Community Newsletter. Summer 25 Newsletter It’s full to the brim with uplifting family stories, community and research updates and information about how to safe and well in the heat. Please
BEAT THE HEAT! The UK is bracing itself for another heatwave, and as these seem to be occurring more frequently, we’ve pulled together some top tips to help keep you and your loved ones safe, cool, and well. Look After Each Other A heatwave can affect anyone, but some people can be affected by the
We Care about Equality for Our Carers This week is Carers Week, from the 9th – 15th June 2025 The most recent Census 2021 found that there are 5.8 million unpaid carers in the UK. What is Carers Week? Carers week is the time to raise awareness and give recognition to the 5.8 million carers in
Join us this summer for an incredible adventure! This Summer, ASUK is calling on our supporters to join our fundraising campaign. No challenge is too big or small.From sponsored walks and fun runs to adrenaline-pumping skydives, this is your chance to do something amazing—for yourself and for others. Together, we can raise funds and make
Check you’re receiving the right support There have been some payment increases for those who receive benefits from the Department of Work & Pensions (correct as of April 2025). If you don’t currently claim these benefits and would like to talk it through with our support team, the ASUK Care Coordinators, can support you through the process: