Latest News


ASUK speaks up for Patients in Clinical Trial Design Study

Date: 08 Feb, 2019  No Comments  ASUK USER

#TimeforChange Kerry Leeson-Beevers, National Development Manager for ASUK, along with ten other patient representatives, who are all members of the Patient Think Tank (PTT) of a European research consortium for


ASUK Annual Review Summary

Date: 22 Dec, 2018  No Comments  ASUK USER

The ASUK Annual Review Summary is now published! This summary captures our activities from the last financial year. We hope you agree that this gives a snapshot of how we


A huge THANK YOU to Children in Need!

Date: 01 Aug, 2018  No Comments  ASUK USER

A huge THANK YOU to Children in Need! ASUK are committed to improving services for our young people and their families. In 2015, we were lucky enough to receive 3


Thank you Wickersley Cricket Club!

Date: 18 Jul, 2018  No Comments  ASUK USER

Alström Syndrome UK would like to extend our thanks to Wickersley Cricket Club!  Yet again members of the club have very kindly donated £1,916.66 to Alström Syndrome UK following a


ASUK Big Activity Challenge

Date: 07 Jun, 2018  No Comments  ASUK USER

What is the Big Activity Challenge? ASUK are now offering adults (18’s and over) with Alström Syndrome, the chance to try a new activity. You can apply for between £50-£500


A quiz show STAR!

Date: 31 May, 2018  No Comments  ASUK USER

A quiz show star! Well done Ellie on your SUPERB performance on the BBC show Hardball! Click HERE to view the show in full!