News Article


Wellbeing Team gets a Boost!

Date: 26 Apr, 2024  No Comments  Alstrom Admin

Melissa joins the ASUK Team We have the fantastic news, that Melissa Crowland who many of you will know as one of our Trustees has now joined our ASUK team


Rare Disease Centres get the green light!

Date: 24 Apr, 2024  No Comments  Alstrom Admin

LifeArc launches £40m research centres to hopefully unlock new tests and treatments for people living with rare diseases The aim of the 4 new LifeArc Translational Centres for Rare Diseases,


Winter newsletter out now!

Date: 20 Dec, 2023  No Comments  Alstrom Admin

Wising you all a lovely time over the festive period Grab something warm to drink and take 5 minutes to read these uplifting family stories in our latest Winter newsletter.


ASUK Annual Review Summary

Date: 22 Dec, 2018  No Comments  ASUK USER

The ASUK Annual Review Summary is now published! This summary captures our activities from the last financial year. We hope you agree that this gives a snapshot of how we


A huge THANK YOU to Children in Need!

Date: 01 Aug, 2018  No Comments  ASUK USER

A huge THANK YOU to Children in Need! ASUK are committed to improving services for our young people and their families. In 2015, we were lucky enough to receive 3


Thank you Wickersley Cricket Club!

Date: 18 Jul, 2018  No Comments  ASUK USER

Alström Syndrome UK would like to extend our thanks to Wickersley Cricket Club!  Yet again members of the club have very kindly donated £1,916.66 to Alström Syndrome UK following a