blog


Kerry Leeson-Beevers

Date: 15 Oct, 2015  No Comments  adm1n

I joined Alström Syndrome UK (ASUK) in 2003 when it was first suggested that my son may have the condition. His diagnosis was later confirmed following genetic testing. I have


Catherine Lewis

Date: 15 Oct, 2015  No Comments  adm1n

I have worked for Alström Syndrome UK in a variety of roles since 2010, but have been part of the Alstrom community since 2006 when I had the privilege to


Marie McGee

Date: 15 Oct, 2015  No Comments  adm1n


Steve Scoffield

Date: 15 Oct, 2015  No Comments  adm1n


Melissa Crowland

Date: 22 Apr, 2015  No Comments  Alstrom Admin

I am very new to Alström Syndrome, beginning my journey with the condition in 2018. It has been a very interesting journey but I’m very grateful for all the support


Clair Pudaruth

Date: 22 Apr, 2015  No Comments  Alstrom Admin

Hello, I’m Clair Pudaruth and I joined the ASUK team in August 2023 as the new Care Coordinator working alongside Sarah Oliver.  I work three days a week, usually Tuesday,


  • 1
  • 2