I joined Alström Syndrome UK (ASUK) in 2003 when it was first suggested that my son may have the condition. His diagnosis was later confirmed following genetic testing. I have
I have worked for Alström Syndrome UK in a variety of roles since 2010, but have been part of the Alstrom community since 2006 when I had the privilege to
I am very new to Alström Syndrome, beginning my journey with the condition in 2018. It has been a very interesting journey but I’m very grateful for all the support
Hello, I’m Clair Pudaruth and I joined the ASUK team in August 2023 as the new Care Coordinator working alongside Sarah Oliver. I work three days a week, usually Tuesday,
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