Author


EMA to relocate to Amsterdam

Date: 21 Nov, 2017  No Comments  ASUK Author

The European Medicines Agency is currently located in London in the UK and the Agency is responsible for the scientific evaluation, supervision and safety monitoring of medicines in the EU. The EMA covers 28 EU Member States, as well as the countries of the European Economic Area, by ensuring that all medicines available on the


ASUK in Barcelona at the World Orphan Drugs Congress

Date: 14 Nov, 2017  No Comments  ASUK Author

ASUK Chief Executive, Ann Chivers is attending the World Orphan Drugs Congress in Barcelona from the 13th – 15th November 2017. Discussing the importance of orphan drug and clinical development for all rare diseases. Ensuring at the start of any development families and individuals affected are involved and engaged. Follow us on twitter @AS_UK for


Wow! – Listen to Inspirational Kion on BBC Radio 2

Date: 14 Nov, 2017  No Comments  ASUK Author

Listen to inspirational Kion (pictured below) who featured on BBC Radio 2’s Chris Evans morning show, on Monday 13th November 2017. Follow the link below to the recording, if you move the iplayer to 2 hours 1 min you can hear from Kion speaking about having Alstrom Syndrome and the work of Alstrom Syndrome UK to promote


Stay Well This Winter

Date: 08 Nov, 2017  No Comments  ASUK Author

The NHS #StayWellThisWinter campaign has launched to ensure everyone who is eligible receives their free flu vaccination. As you know, Flu is a highly infectious disease and can lead to serious complications, particularly in these risk groups listed below: anyone aged 65 and over pregnant women children and adults with an underlying health condition (such as long-term heart or


ASUK in Italy!

Date: 29 Sep, 2017  No Comments  ASUK Author

ASUK Chief Executive, Ann Chivers and National Development Manager, Kerry Leeson-Beevers will be attending the ‘Alstrom Italy’ conference about ‘Rare Diabetes and Obesity Syndromes’ in Padua, Italy on the 29th and 30th September 2017. They will also be presenting ‘The Voice of Patient’s Associations’ about ensuring the patients voice is always heard during research development


National Eye Health Week

Date: 18 Sep, 2017  No Comments  ASUK Author

National Eye Health week begins on Monday 22nd September until Sunday 24th September 2017 and aims to promote the importance of eye health and help prevent avoidable sight loss. Organisations and professionals across the sector will join together to raise awareness of eye health and promote the importance of having regular eye tests. Eye tests