Wow! – Listen to Inspirational Kion on BBC Radio 2

Date: 14 Nov, 2017  No Comments  ASUK Author

Listen to inspirational Kion (pictured below) who featured on BBC Radio 2’s Chris Evans morning show, on Monday 13th November 2017. Follow the link below to the recording, if you move the iplayer to 2 hours 1 min you can hear from Kion speaking about having Alstrom Syndrome and the work of Alstrom Syndrome UK to promote

Stay Well This Winter

Date: 08 Nov, 2017  No Comments  ASUK Author

The NHS #StayWellThisWinter campaign has launched to ensure everyone who is eligible receives their free flu vaccination. As you know, Flu is a highly infectious disease and can lead to serious complications, particularly in these risk groups listed below: anyone aged 65 and over pregnant women children and adults with an underlying health condition (such as long-term heart or

ASUK in Italy!

Date: 29 Sep, 2017  No Comments  ASUK Author

ASUK Chief Executive, Ann Chivers and National Development Manager, Kerry Leeson-Beevers will be attending the ‘Alstrom Italy’ conference about ‘Rare Diabetes and Obesity Syndromes’ in Padua, Italy on the 29th and 30th September 2017. They will also be presenting ‘The Voice of Patient’s Associations’ about ensuring the patients voice is always heard during research development

National Eye Health Week

Date: 18 Sep, 2017  No Comments  ASUK Author

National Eye Health week begins on Monday 22nd September until Sunday 24th September 2017 and aims to promote the importance of eye health and help prevent avoidable sight loss. Organisations and professionals across the sector will join together to raise awareness of eye health and promote the importance of having regular eye tests. Eye tests

News, Views and Useful Links (August Edition)

Date: 04 Sep, 2017  No Comments  ASUK Author

You can find our latest News, Views and Useful Links here ASUK would love to hear from you, send us your news, articles or any links that you think others would find useful.  Get in touch by email or give me a call on 01803 368871. Please feel free to circulate our News, Views and Useful Links

ASUK presenting at Asterix Symposium

Date: 15 Aug, 2017  No Comments  ASUK Author

ASUK are delighted to be attending the Asterix End Symposium on the 18th and 19th September 2017 in the Netherlands. The focus will be on the ‘New Methodology for clinical trials in rare diseases’ and ASUK National Development Manager, Kerry Leeson-Beevers will be presenting on the role of patient engagement in clinical research. Ensuring patients