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News, Views and Useful Links (August Edition)

Date: 04 Sep, 2017  No Comments  ASUK Author

You can find our latest News, Views and Useful Links here ASUK would love to hear from you, send us your news, articles or any links that you think others would find useful.  Get in touch by email Catherine.lewis@alstrom.org.uk or give me a call on 01803 368871. Please feel free to circulate our News, Views and Useful Links


ASUK presenting at Asterix Symposium

Date: 15 Aug, 2017  No Comments  ASUK Author

ASUK are delighted to be attending the Asterix End Symposium on the 18th and 19th September 2017 in the Netherlands. The focus will be on the ‘New Methodology for clinical trials in rare diseases’ and ASUK National Development Manager, Kerry Leeson-Beevers will be presenting on the role of patient engagement in clinical research. Ensuring patients


We are moving!

Date: 21 Jul, 2017  No Comments  ASUK Author

From the 24th July 2017 the charities registered office address will change to: 4 St Kitts Close Torquay Devon TQ2 7GD During this time the current office telephone number 01803 613117 will not work so please dial 01709 210151 for all enquiries. If your enquiry is urgent please call 07970 071675


Breaking down Barriers website launched

Date: 17 Jul, 2017  No Comments  ASUK Author

Breaking down Barriers, website has launched! Developing supportive and inclusive services for individuals and families affected by genetic conditions. Have a look at the new website to find out more about this project and the fantastic work being achieved. http://breaking-down-barriers.org.uk/


Generation Genome Report Launched

Date: 11 Jul, 2017  No Comments  ASUK Author

Chief Medical Officer, Professor Dame Sally Davies’s has finalised an independent report to the government as she looks at the role of genomics. In particular how genomics may have the potential to improve health and prevent ill-health. The report discusses the current genomic provision in the NHS and looks in greater detail at the screening


Shades for Sight campaign

Date: 28 Jun, 2017  No Comments  ASUK Author

The 27th June 2017 marks National Sunglasses Day To highlight the importance of wearing sunglasses; RNIB asked everyone to support the campaign ‘Shades for Sight’ by posting a selfie of themselves in their sunglasses. Sunglasses protect your eyes, so remember to wear them 😎   Team at ASUK, even our furry friends are getting in on the