Latest News


Around the World with Alstrom #AlstromGlobal

Date: 02 May, 2019  No Comments  ASUK USER

Jetting off to the Alstrom Syndrome International Conference in the USA! ASUK Trustee, Alex Griffiths-Rayson and Chief Executive, Ann Chivers set-off on the 30th April 2019 to attend the Alstrom


My Guide Dog and Me…

Date: 12 Apr, 2019  No Comments  ASUK USER

Have you ever wondered what having a guide dog is really like, how are you assessed and what training is involved? Meet Kion and Curtis, they have both passed their


Travelling Blind; Where will your adventure take you?

Date: 08 Mar, 2019  No Comments  ASUK USER

  On 7th March 2019 BBC Two aired a travelling show with a difference, Travelling Blind. This featured Amar Latif, founder of Travel Eyes and comedian Sara Pascoe as they


In case you missed our Annual General Meeting…

Date: 08 Feb, 2019  No Comments  ASUK USER

Our Annual General Meeting took place on the 24th January 2019. This year we decided to do this by webinar/tele-conference to be as accessible as possible to allow as many


ASUK speaks up for Patients in Clinical Trial Design Study

Date: 08 Feb, 2019  No Comments  ASUK USER

#TimeforChange Kerry Leeson-Beevers, National Development Manager for ASUK, along with ten other patient representatives, who are all members of the Patient Think Tank (PTT) of a European research consortium for


ASUK Annual Review Summary

Date: 22 Dec, 2018  No Comments  ASUK USER

The ASUK Annual Review Summary is now published! This summary captures our activities from the last financial year. We hope you agree that this gives a snapshot of how we