Would YOU Give a Coffee to ASUK!

Date: 09 Jul, 2019  No Comments  ASUK USER

Hot off the Press! – Summer Newsletter Out NOW!

Date: 05 Jul, 2019  No Comments  ASUK USER

  As the weather is hotting up, grab something chilled and take 5 minutes to read our latest newsletter. Filled with lots of stories from our members including travels to Barbados and America and how Birmingham Bobbies made dreams come true… Find out how you can get involved in planning your Family Event on the

Be a Rare Champion!

Date: 01 Jul, 2019  No Comments  ASUK USER

Can you remember when we gathered together on our bikes to ride from Torquay to Birmingham, an amazing 200 miles to raise money and awareness of Alstrom Syndrome or when Nichola Martland along with her friends and family persuaded her friend to be waxed!! Eeekkk!! We rely on your continued generosity and support to continue


Date: 14 Jun, 2019  No Comments  ASUK USER

ASUK is very excited to announce that the next ASUK family gathering will take place in Birmingham on Saturday 19th October 2019.  ASUK are beginning to plan a family event to bring us all together; for a day full of fun activities, information and updates, accessible product demonstrations and interactive workshops.  This will be followed in the

YOU have the Power to Make a Difference in just 15 minutes!

Date: 13 Jun, 2019  No Comments  ASUK USER

YOUR data is critical in the fight to make a real difference to the lives of all those affected by Alström Syndrome (AS) YOU have the power to improve lives for the better by simply providing us with answers to some of the questions we have about infant health. ASUK have created an infant questionnaire

Accessible Travel Lounge Opens!

Date: 11 Jun, 2019  No Comments  ASUK USER

Rail passengers using Birmingham New Street Station can now use a new assisted travel lounge which opened on the 10th June 2019. The lounge was provided by Network Rail as part of their ‘Railway Upgrade Plan’ and was designed with the guidance of Birmingham New Street’s accessibility forum, which includes people with disabilities, their carers