Be a Rare Champion!

Be a Rare Champion!

Date: 01 Jul, 2019  No Comments

Can you remember when we gathered together on our bikes to ride from Torquay to Birmingham, an amazing 200 miles to raise money and awareness of Alstrom Syndrome or when Nichola Martland along with her friends and family persuaded her friend to be waxed!! Eeekkk!!

We rely on your continued generosity and support to continue supporting families with this ultra-rare condition. Every penny donated really does make a HUGE difference.

Now the weather is warming up nicely, why not hold a fundraising event such as a BBQ, quiz or something more energetic like a bike ride or marathon, if something more chilled out is your scene, what about tea and cake with friends.

There are so many ideas, why not get in touch with Catherine who can give you a hand to plan your event at or give her a call on 01803 368871, she would love to hear from you.

If you would like to donate directly to ASUK or set-up a fundraising page, click HERE to head across to our dedicated Just Giving page, or click on the Just Giving logos and make a difference today!