#AlstromSyndrome


Time to Talk – Organ Donation

Date: 09 Sep, 2020  No Comments  Alstrom Admin

To coincide with Organ Donation Week from the 7th – 13th September 2020,  we would like to shine a spotlight on Organ Donation – looking at the right information to help you make the right choices for you and your family. Sifting through the myths and getting to the facts of the matter. The NHS


Hammer Down!

Date: 24 Mar, 2020  No Comments  ASUK USER

Hammer Down Hassan When you are thinking of staying at home for many weeks, it can be a daunting prospect but why not check out this uplifting film. Let’s look for ways we can keep ourselves active and healthy. Share your ideas with us and we will bring together ideas and information to keep us


Coronavirus Guidance

Date: 20 Mar, 2020  No Comments  ASUK USER

There is also specific advice for Scotland, Wales and Northern Ireland, so please ensure you relate our guidance to your own area too: If you live in Wales, the government’s advice on shielding can be found here: https://gov.wales/guidance-shielding-and-protecting-people-defined-medical-grounds-extremely-vulnerable-coronavirus-0 If you live in Scotland, the government’s advice on shielding can be found here: https://www.gov.scot/publications/covid-shielding/ If you


Active Lifestyle Winner!

Date: 13 Mar, 2020  No Comments  ASUK USER

Active Bradford is a partnership of organisations committed to making Bradford a healthier and more prosperous place to live and work. Each year Active Bradford host an awards ceremony where they recognise those people and organisations who go above and beyond in their local area to help other people get active or through their own


Courage Award for Courageous Jai!

Date: 10 Mar, 2020  No Comments  ASUK USER

On the 10th March 2020 the annual Children of Courage Awards ceremony took place. The awards are given to children and young people who display outstanding courage and tenacity to overcome exceptional difficulties and hardships. Jai was nominated by his teachers at his school as being one such youngster who has shown exceptional courage not


Rare Disease Day 2020

Date: 19 Feb, 2020  No Comments  ASUK USER

On the last day of February every year the rare disease community comes together to raise awareness of rare diseases and their impact. This year is particularly special as Rare Disease Day falls on a leap year so it is even more rare falling on the 29th February 2020. The key message this year is that: