Alstrom


We are here for you

Date: 20 Mar, 2020  No Comments  ASUK USER

The Corona Virus epidemic and how we can support you and your family. I’m sure you, like us all, are anxious for yourself and your family at this unprecedented time. I wanted to share with you what we are doing and what we can do to support you and your family through these worrying and


Active Lifestyle Winner!

Date: 13 Mar, 2020  No Comments  ASUK USER

Active Bradford is a partnership of organisations committed to making Bradford a healthier and more prosperous place to live and work. Each year Active Bradford host an awards ceremony where they recognise those people and organisations who go above and beyond in their local area to help other people get active or through their own


Courage Award for Courageous Jai!

Date: 10 Mar, 2020  No Comments  ASUK USER

On the 10th March 2020 the annual Children of Courage Awards ceremony took place. The awards are given to children and young people who display outstanding courage and tenacity to overcome exceptional difficulties and hardships. Jai was nominated by his teachers at his school as being one such youngster who has shown exceptional courage not


Make a Difference, Vote Today!

Date: 10 Feb, 2020  No Comments  ASUK USER

In the world of rare diseases, awareness no matter how big or small makes a HUGE difference. Rare Disease UK held the 1st Rare Film Festival to raise awareness of Rare Diseases on the 10th February 2020.  Over 50 films were submitted to take part in the event and the film ‘Living with Alstrom Syndrome’ was chosen as


Safe and Savvy Online

Date: 06 Feb, 2020  No Comments  ASUK USER

As part of Safer Internet Day 2020,  the charity Look UK have teamed up with the not-for-profit company Wise Kids to provide a free webinar for youngsters with a visual impairment and their parents, about keeping safe online. This will be happening on the 11th February 2020 at 8pm. If you would like to register


Groove to the Alstrom Stroove – Sneak Peek!

Date: 17 Jan, 2020  No Comments  ASUK USER

This film is a must see – bringing together clinicians, families and the ASUK team to Groove to the Alstrom Stroove! Alström Syndrome UK are always looking for fun and innovative ways to stay fit and healthy. Alström can often lead to obesity and type 2 diabetes so leading a healthy lifestyle is very important