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EURORDIS: access to medicines for all

Date: 15 May, 2017  No Comments  ASUK Author

EURORDIS has published their position on early access to medicines in Europe; arguing for compassionate use to become a reality so patients in urgent need get the help and treatments


Awareness Animation is Launched!

Date: 10 May, 2017  No Comments  ASUK Author

ASUK is very excited to launch our Alström Syndrome ‘Living with a Rare Disease’ animation to raise awareness and understanding about this rare disease. Let’s all raise awareness and share