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Date: 13 Jun, 2025 We Care about Equality for Our Carers This week is Carers Week, from the 9th – 15th June 2025 The most recent Census 2021 found that there are 5.8 million unpaid carers in the UK. What is Carers Week? Carers week is the time to raise awareness and give recognition to the 5.8 million carers in
Join us this summer for an incredible adventure! This Summer, ASUK is calling on our supporters to join our fundraising campaign. No challenge is too big or small.From sponsored walks and fun runs to adrenaline-pumping skydives, this is your chance to do something amazing—for yourself and for others. Together, we can raise funds and make
Check you’re receiving the right support There have been some payment increases for those who receive benefits from the Department of Work & Pensions (correct as of April 2025). If you don’t currently claim these benefits and would like to talk it through with our support team, the ASUK Care Coordinators, can support you through the process:
Celebrate World AS Day To celebrate World Alström Day we will be holding a Research Ready Webinar, where alongside Professor Tim Barrett, we will be able to tell you all about the latest research initiatives and future developments. Speaker: Professor Tim Barrett (Professor of Paediatrics and Child Health & Director for the NIHR Wellcome Clinical
Press Release Alström Research Developments In October 2024, the Alström Syndrome UK (ASUK) Medical and Scientific Advisory group (MSAG) met to discuss progress in Alström Syndrome (AS) research and to explore next steps. Members of the group also stayed on to join the Alström Syndrome Family Conference and listened to our community share their thoughts,
Rare Disease Day takes place on the last day of February every year to raise awareness about rare diseases and their impact on patients lives. This year we launched the AS Community ‘Off the Record’ podcasts and our Chief Executive, Kerry Leeson-Beevers (pictured below on the right) headed off to Westminster! She also met up