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Date: 14 Mar, 2025 Rare Disease Day takes place on the last day of February every year to raise awareness about rare diseases and their impact on patients lives. This year we launched the
Exciting Research Opportunity: Investigating Neuropathy and Ophthalmic Biomarkers in Alström Syndrome We are pleased to share an exciting opportunity to take part in a ground-breaking research study led by Professor Tarek
All Ears Radio – Goes Live! Where every story finds a listener… All Ears Radio has been designed for visually impaired radio lovers! Our very own Abdullah is not only
Wising you all a lovely time over the festive period. Grab something warm to drink and take 5 minutes to read these uplifting family stories, updates from the conference and
We have a special treat for you… At the recent ASUK Conference, Aisha from the AS Culture Family Forum got us all in the Christmas spirit by singing Mariah Carey’s
Supporting ASUK at Christmas. With the cost of postage going through the roof and us all looking for ways to help and support one another over the festive period… Why