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Journey to Diagnosis Report – out now!

Date: 19 Aug, 2024  No Comments  Alstrom Admin

Journey to Diagnosis Report Let’s set the scene, the joy of having your first born turns to despair as you know something just isn’t quite right. They have an un-controllable


Summer Newsletter is Out Now!!

Date: 19 Aug, 2024  No Comments  Alstrom Admin

Here comes the ASUK Summer newsletter – full of uplifting family stories, and join us in celebrating 9 years of the Children in Need project, discover family grants available, read


Grant Finder

Date: 11 Jun, 2024  No Comments  Alstrom Admin

Grants for Holidays and Day Trips Now we are approaching summer and hopefully we get some sunny weather, you may be looking for things to do.  We know how expensive


Dreams can come true!

Date: 21 May, 2024  No Comments  Alstrom Admin

Jai’s Dream Took Flight at Birmingham Airport! Work experience gives young people the opportunity to have a short-term placement with an employer, to work alongside people as they go about


Join our Alström Chats

Date: 21 May, 2024  No Comments  Alstrom Admin

Join our Alström Chats Our Care Coordinator, Clair Pudaruth is bringing parents and carers of those affected by Alström Syndrome in the UK together, to share their experiences, insights and


Wellbeing Team gets a Boost!

Date: 26 Apr, 2024  No Comments  Alstrom Admin

Melissa joins the ASUK Team We have the fantastic news, that Melissa Crowland who many of you will know as one of our Trustees has now joined our ASUK team