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Rare Disease Centres get the green light!

Date: 24 Apr, 2024  No Comments  Alstrom Admin

LifeArc launches £40m research centres to hopefully unlock new tests and treatments for people living with rare diseases The aim of the 4 new LifeArc Translational Centres for Rare Diseases,


Winter newsletter out now!

Date: 20 Dec, 2023  No Comments  Alstrom Admin

Wising you all a lovely time over the festive period Grab something warm to drink and take 5 minutes to read these uplifting family stories in our latest Winter newsletter.


Invitation to Inaugural Lecture: Alstrom Past, Present and Future

Date: 13 Apr, 2023  No Comments  Alstrom Admin

In celebration of Alström Syndrome UK turning 25, AS Global is pleased to announce the world’s first annual lecture all about Alström Syndrome. Alström Syndrome Past, Present and Future. You


AS Global ‘Managing and Reviewing Medication’ Webinar

Date: 13 Mar, 2023  No Comments  Alstrom Admin

Managing and Reviewing Medication AS Global is holding it’s next webinar all about Medications… What matters to you as a patient and what matters to Moms, Dads and Carers of


People Power!

Date: 08 Feb, 2023  No Comments  Alstrom Admin

A Truly Accessible World for Everyone – People Power! Imagine for a moment – that you walk into your usual supermarket and every item has blank labels on them, and


Winter newsletter is out now!

Date: 10 Jan, 2023  No Comments  Alstrom Admin

Pop your feet up for five minutes and read about the latest ASUK news… Including how to get involved next year in ASUK turning 25 and plenty of useful resources