Latest News


Be a Rare Champion!

Date: 01 Jul, 2019  No Comments  ASUK USER

Can you remember when we gathered together on our bikes to ride from Torquay to Birmingham, an amazing 200 miles to raise money and awareness of Alstrom Syndrome or when


YOU have the Power to Make a Difference in just 15 minutes!

Date: 13 Jun, 2019  No Comments  ASUK USER

YOUR data is critical in the fight to make a real difference to the lives of all those affected by Alström Syndrome (AS) YOU have the power to improve lives


Accessible Travel Lounge Opens!

Date: 11 Jun, 2019  No Comments  ASUK USER

Rail passengers using Birmingham New Street Station can now use a new assisted travel lounge which opened on the 10th June 2019. The lounge was provided by Network Rail as


Disabled Blue Badge Rules are Changing

Date: 10 Jun, 2019  No Comments  ASUK USER

Biggest overhaul to the Blue Badge Scheme Did you know that the Blue Badge scheme is to undergo the biggest changes since the 1970s? From April 2019, the scheme will


GAAD – Go Mouseless!!

Date: 16 May, 2019  No Comments  ASUK USER

16th May 2019 Today marks the eighth Global Accessibility Awareness Day #GAAD. The day aims to get everyone talking, thinking and learning about how to make digital technology accessible and


Around the World with Alstrom #AlstromGlobal

Date: 02 May, 2019  No Comments  ASUK USER

Jetting off to the Alstrom Syndrome International Conference in the USA! ASUK Trustee, Alex Griffiths-Rayson and Chief Executive, Ann Chivers set-off on the 30th April 2019 to attend the Alstrom