Latest News


Christmas Cracker!

Date: 18 Dec, 2024  No Comments  Alstrom Admin

We have a special treat for you… At the recent ASUK Conference, Aisha from the AS Culture Family Forum got us all in the Christmas spirit by singing Mariah Carey’s


Don’t send me a card!

Date: 11 Dec, 2024  No Comments  Alstrom Admin

Supporting ASUK at Christmas. With the cost of postage going through the roof and us all looking for ways to help and support one another over the festive period… Why


Journey to Diagnosis Report – out now!

Date: 19 Aug, 2024  No Comments  Alstrom Admin

Journey to Diagnosis Report Let’s set the scene, the joy of having your first born turns to despair as you know something just isn’t quite right. They have an un-controllable


Summer Newsletter is Out Now!!

Date: 19 Aug, 2024  No Comments  Alstrom Admin

Here comes the ASUK Summer newsletter – full of uplifting family stories, and join us in celebrating 9 years of the Children in Need project, discover family grants available, read


Dreams can come true!

Date: 21 May, 2024  No Comments  Alstrom Admin

Jai’s Dream Took Flight at Birmingham Airport! Work experience gives young people the opportunity to have a short-term placement with an employer, to work alongside people as they go about


Join our Alström Chats

Date: 21 May, 2024  No Comments  Alstrom Admin

Join our Alström Chats Our Care Coordinator, Clair Pudaruth is bringing parents and carers of those affected by Alström Syndrome in the UK together, to share their experiences, insights and